The U.S. does very little research into what causes any kind of cancer. The VA has a presumptive list of substances assumed to be carcinogens and thus making veterans exposed to them eligible for cancer treatment benefits. An MPN group has been trying to get Agent Orange and napalm on the presumptive list for MPNs. I grew up near the factory where both were manufactured. Dad and I got ET. Mom and brother were fine.
An MPN specialist explained to me years ago that pinpointing the cause of cancers is very difficult because:
-Carcinogens usually take months or years to cause symptomatic cancers. It's almost impossible to know what you were exposed to at any given time that might have set it off.
-Some people have more predisposition to cancer than others. We all know that one person who smoked all his life, died at 90, and never got cancer. And we know people with similar smoking habits who got cancer and died at 55.
-Industries spend lots of $$ lobbying lawmakers not to investigate and regulate suspected carcinogens. Breast Cancer Alliance has had some success getting farmers not to use waste water from fracking (which contains suspected carcinogens), to irrigate crops. But consumer groups often have far less clout than industries.
-Cancer studies in animals are not always good predictors of what will cause cancers.
If doctors notice a significant increase in MPNs in patients post-covid vax, it warrants further study. But previous research indicates that the mutation lies dormant in most of us for years, even decades, before becoming symptomatic.
I think I may be one of the people with the Jak2 mutation that lay dormant for many years--at least 30 years. I was first identified with "sticky" blood at age 39. My endocrinologist told me to take one baby aspirin a day and it never came up again for 30 years. In January 2023, at age 69, after 5 COVID shots in 18 months, my platelets had gone from 400 to 700K. I do believe the COVID shots were the trigger, but I have found no evidence to support it. I even contacted MPN specialist, Dr.Reuben Mesa, who said there does not appear to be a connection at this time. I take HU, 500 mg, 2x week, daily baby aspirin, and daily iron. I am not anemic, but I have low iron in my blood work. I wish someone would collect data on this. I tried to leave this information on the CDC website as a side effect, but could not figure out how to leave the feedback. If anyone has info on leaving the feedback, I'd like to know and follow through. Thank you and I wish all of you stable health and a long life with this illness.
Karla