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Anyone have Cutaneous T Cell Lymphoma?

Blood Cancers & Disorders | Last Active: Jul 9 8:01pm | Replies (175)

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@buddoc

I have CTCL- MF. Initially, that is about 8yrs ago, I had 72 UVB light treatments ( phototherapy) which cleared the lesions, mainly on my legs. I stayed in remission until 4 months ago and started on steroid creams, which hasn’t been too successful. I’m waiting to see my dermatologist to consider further treatments. I am 80yrs and have multiple co-morbidities .

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Replies to "I have CTCL- MF. Initially, that is about 8yrs ago, I had 72 UVB light treatments..."

Hi @buddoc, welcome. How long has it been since you stopped UVB light treatments? Have you talked with the dermatologist in the meantime? Might you be able to start light treatments again?