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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)

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@monte22

Hi, thank you so much for the reply, I'm sure for those that have been in the forum for a while are tired of answering the same questions over and over and seeing the same questions but in my circumstance I literally cannot scroll more than one or two pages daily and cannot type more than a couple keystrokes per day otherwise my arms become very painful and numb similar to wearing an extra tight scuba diving suit, I've never worn a scuba diving suit but I could imagine if one were to wear a very small tight suit it would feel like my upper extremities right now. I cannot even sign my name, I have to use a stamp, my IGG numbers are in the low to mid 2000s, all my blood work is in normal ranges, my hematologist ordered a bone biopsy and a bone scan which will be conducted in November 2023. I had to stop working in October of 2022 because I could no longer perform my duties as a social worker, anytime I use my hands my wrists forearms upper arms and chest become extremely tight and numb. I've had so many tests I can't even keep track and nothing seems to be coming back with any indications of something being wrong. I hope to God I don't have multiple myeloma but if I do I guess I'll deal with it. Hopefully the tests come back negative and there's something else less invasive going on. I appreciate your reply. I have to use voice text via my email then copy and paste so please forgive any good miracle errors or spelling errors. Thank you again take care.

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Replies to "Hi, thank you so much for the reply, I'm sure for those that have been in..."

Hi @monte22 Most of us in the forum have some medical issues that we’re either facing, working through or have overcome. Either way, we’re all here because it’s a special place where we can help others. No one mind repeating information what may be a lifeline to someone else. I’m just happy you’re here with us.
But I am sad to hear about your horrible feelings in your arms and hands. I went through similar this past spring and honestly, your description of wearing a too tight scuba suit is accurate. After an MRI and tests to make sure there was nothing else going on, I went to see a licensed Massage Therapist. She worked miracles and within 3 sessions she had me back to normal…no waking up in the middle of the night with numb hands or arm/wrist pain. I couldn’t type or hold a book or phone. So it may be worth your time to find a licensed massage therapist who specializes in neurological massage or myofascial release massage. I really felt there was no hope and my therapist worked miracles.
Have you tried a massage??

I’m a social worker too! So sorry you are suffering. 🥹