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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)
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@sharon55

I have MGUS. My Dr wants me to take Tymlos to strengthen my bones. I have osteopenia & osteoporosis. I received the Tymlos today. The 20 page Medicine Guide that came with it, states this drug could possible cause bone cancer. I wasn’t told this. Does anyone have this situation?

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Replies to "I have MGUS. My Dr wants me to take Tymlos to strengthen my bones. I have..."
2121 | @leslie2121 | Oct 26, 2023

I also was surprised to learn about having osteoporosis as I’m very active. (65 now). I was concerned about Tymlos for that reason.
I checked with my oncologist about which osteoporosis drug was safest. She said either one was okay to take with MGUS.
But before I could take anything, I went snow skiing and got 2 vertebral compression fractures- never broken any bones before (was 63 then).
So started Evenity then did a Reclast infusion last November. Had side effects with both but they were effective- no more fractures (no snow skiing either!).
I’ve taken a few spills (turned my ankle, etc but nothing broke.

However the black box warning on Tymlos may be removed now?
I think the warning on Evenity may be gone too.

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