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Welcome to Connect, @monte22. MGUS generally is perceived as not having many symptoms but as other members, such as @laurinea, can attest to, they do have symptoms such as neuropathy, night sweats, etc..
I’ve found a number of conversations in the forum with other members. I realize that you’re having a difficult time being able to cull through them yourself but if you could read a little bit, there is a discussion where there is a lot of information. Here’s the link:
~Does anyone have any info on MGUS treatment or risk of progression?
https://connect.mayoclinic.org/discussion/does-anyone-have-any-info-on-mgus-treatment-or-risk-of-progression/
@nick86 had similar questions about anxiety and what to take to slow the progression of MGUS. Other members in this discussion with sage advice are @pmm and @gingerw,
@leslie2121 is taking Curcumin to help with inflammation and @remainanonymous has mentioned the possible use of Metformin to slow the progression of MGUS.
There are many other members offering up suggestions and things that have helped them. So if you’re able, please read through the comments a couple at a time.
Everyone’s case is a little different so something that may work for them may not be suitable for you. I’m so sorry you’re having such a terrible time with side effects. May I ask what you’re experiencing?
MGUS can progress into a blood condition called Myltiple Myeloma which can have some serious complications and more symptoms.
When was the last time you’ve been evaluated for your condition?
Replies to "Welcome to Connect, @monte22. MGUS generally is perceived as not having many symptoms but as other..."
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Hi, thank you so much for the reply, I'm sure for those that have been in the forum for a while are tired of answering the same questions over and over and seeing the same questions but in my circumstance I literally cannot scroll more than one or two pages daily and cannot type more than a couple keystrokes per day otherwise my arms become very painful and numb similar to wearing an extra tight scuba diving suit, I've never worn a scuba diving suit but I could imagine if one were to wear a very small tight suit it would feel like my upper extremities right now. I cannot even sign my name, I have to use a stamp, my IGG numbers are in the low to mid 2000s, all my blood work is in normal ranges, my hematologist ordered a bone biopsy and a bone scan which will be conducted in November 2023. I had to stop working in October of 2022 because I could no longer perform my duties as a social worker, anytime I use my hands my wrists forearms upper arms and chest become extremely tight and numb. I've had so many tests I can't even keep track and nothing seems to be coming back with any indications of something being wrong. I hope to God I don't have multiple myeloma but if I do I guess I'll deal with it. Hopefully the tests come back negative and there's something else less invasive going on. I appreciate your reply. I have to use voice text via my email then copy and paste so please forgive any good miracle errors or spelling errors. Thank you again take care.