My son has had many of them. They didn’t necessarily work for him, but there were other kids in the hemoc department that it worked really well for. So for the kids there’s an infusion room and they come in and put the IV in and then they just start running the IVIG I think he was playing battleship when it started lol and then he got what’s called the Rigers. He started to shake and feel really uncomfortable, nausea, headache, just really crappy and that only meant they needed to slow the infusion down, that it was going in too fast. Once they slowed down the infusion, it was much better. Other than that, and him not liking getting poked, the infusions were not horrible at all for him, they just didn’t work. Ultimately he had a spleen removed and that has kept him in a permanent remission for 30 years now.

Hi @emmalapp, results with IVIG may vary from patient to patient. As @donnasouthwick, the treatment didn't work for her son. According to this article https://www.pdsa.org/treatments/conventional/immunoglobulins.html
"IVIG temporarily increases the platelet count in about 80 percent of ITP patients.2 The duration of the response varies and the treatment can be repeated when the platelet count drops.

IVIg does not work very well for those ITP patients who have anti-GPIbalpha antibodies on their platelets."

You might be interested in this related discussion about IVIG and treatment as blood disorders
- Most effective way to administer IVIG
https://connect.mayoclinic.org/discussion/most-effective-way-to-administer-ivig/

Have you decided to try IVIG?