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Transplant: BK Virus

Transplants | Last Active: Apr 16 10:39pm | Replies (120)
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@hello1234

Hi @stephanierp
It is so nice to hear from you! I always enjoy your posts. I am also 3 year post kidney transplant 😊 When I had BK virus, my Cellcept was reduced (TAC maintained at 6 to 8 range) and about 6 months later, my BK viral number in the blood was finally negative, but the urine is still positive.
When you mentioned that some of your meds were switched around. I am curious if you stopped Cellcept completely or if your TAC was changed?
I always like to educate myself about the different immune suppression meds and BK patient experiences. Every once in a while my blood work comes back with a slightly elevated BK blood number so I continue to monitor for it and stay vigilant.

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Replies to "Hi @stephanierp It is so nice to hear from you! I always enjoy your posts. I..."
stephanierp | @stephanierp | Oct 24, 2023

Hi hello1234,
Nice to hear from you, as well! Please don't be shocked by my ignorance, but I do not recall the specifics. I know over the course of 3 years, I have been removed from Prednisone altogether; my amount of Mycophenolate Acid was reduced to the lowest dose possible, after BK issues; and I was removed from Tac and placed on modified Cyclosporine, after a horrible bout of pancreatitis. I am often slightly below the recommended ranges of imunno level (trough) in my bloodwork, but it is a price I have to pay to keep BK virus at bay. And my creatinine levels are really good, and the new kidney seems really happy anyway:)

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