SSID would not even began to start working on mine until I had atrophy in both feet. That’s their guidelines according to them. They keep dragging it out. I went to my US a US Senator who is looking into why my case is taking so long. I more than qualify with the severity of the polyneuropathy (not including my heart, kidneys, bladder and everything the neuropathy has affected), it has affected my speech and swallowing, seizures, essential tremors, pericardial effusion, lymphedema, four left hip replacements along with actebulum fracture, and I am having a second lower back surgery, also spinal bifida, I can no longer dress myself, my food has to be cut up and I can no longer do it myself In the mean time I have been referred to the University of Boston plus University of Heidelberg Germany. I think it’s crazy we have to jump through all these hoops.