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Transplant: BK Virus

Transplants | Last Active: Apr 16 10:39pm | Replies (120)
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@stephanierp

Hi Kim,
I had a kidney transplant 3 and 1/2 years ago. My BK Virus numbers went up about a year after transplant. The treatment, for me, was for my doctor to reduce my immunotherapy drugs, and switch some things around. I am not aware of any other treatment. For me, we shortened the amount of time between bloodwork and switched meds around and the numbers came down gradually. I hope this is helpful.

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Replies to "Hi Kim, I had a kidney transplant 3 and 1/2 years ago. My BK Virus numbers..."
hello1234 | @hello1234 | Oct 24, 2023

Hi @stephanierp
It is so nice to hear from you! I always enjoy your posts. I am also 3 year post kidney transplant 😊 When I had BK virus, my Cellcept was reduced (TAC maintained at 6 to 8 range) and about 6 months later, my BK viral number in the blood was finally negative, but the urine is still positive.
When you mentioned that some of your meds were switched around. I am curious if you stopped Cellcept completely or if your TAC was changed?
I always like to educate myself about the different immune suppression meds and BK patient experiences. Every once in a while my blood work comes back with a slightly elevated BK blood number so I continue to monitor for it and stay vigilant.

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