← Return to Transplant: BK Virus
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Replies to "Hello all, I am new to this group. My husband is post kidney/pancreas transplant of 6..."
Hi @kim1656 😊
Welcome to our Transplant Support Group! It's very nice to meet you. I had a very high BK urine level (over 100 million) and low BK blood level when my immune suppression was reduced. I think the concern of a very high BK level in the urine, is that eventually you may see it in the blood. How high is your husband's BK level in the urine? Are they reducing his immune suppression now or are they going to continue to monitor for BK levels in the blood and then adjust down?
@kim1656, Hi, Kim, and Welcome to Connect. I have not had BK virus show up in my labs however it did read that it could be activated at anytime. Since we, transplant recipients, are taking medications to suppress our immune system, it is especially important to start treatment as soon as it is detected.
I am glad that you have already heard from members, @hello1234 and @stephanierp about their experience and treatment for their BK virus. I hope that by now your husband has been in contact with his doctor and has a treatment plan.
Kim, Have you spoken to the doctor about your question about the treatment in relationship to blood or urine BK numbers? What have the doctors advised regarding his medications? How often will he be tested?
Hi Kim,
I had a kidney transplant 3 and 1/2 years ago. My BK Virus numbers went up about a year after transplant. The treatment, for me, was for my doctor to reduce my immunotherapy drugs, and switch some things around. I am not aware of any other treatment. For me, we shortened the amount of time between bloodwork and switched meds around and the numbers came down gradually. I hope this is helpful.