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Anyone have Cutaneous T Cell Lymphoma?

Blood Cancers & Disorders | Last Active: Jul 9 8:01pm | Replies (175)
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@penn1023

My husband is being evaluated for this and has an appointment with anMF expert in the Northwestern University Chicago area in February but we are on a wait list. The local derm did a biopsy and he suspects it but it says eczema. Hopefully the expert can sort it out.

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Replies to "My husband is being evaluated for this and has an appointment with anMF expert in the..."
shari715 | @shari715 | Oct 23, 2023

I was treated for eczema but my Dermatologist was concerned and took a biopsy. I know the sample went to at least two different pathologist before a diagnosis was made. That took a month. However, it took almost 3 months to do the staging - oncologist appointment plus PET scan. I started treatment - light box right away before even seeing the oncologist. Hope this is helpful.

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