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Polycythemia Vera: Just been diagnosed
Blood Cancers & Disorders | Last Active: 2 days ago | Replies (400)Comment receiving replies
<p>I was diagnosed with pv and put on hu plus baby asprin. Had a few phlebotomy done, ok foe a while also has cll which by some miracle is now in remission with no meds. My dr did a pbs and did not tell me results and now has done another. My cbc was very high platelets and high rbc. they had ne do a phletomy and since i did not hear from dr assume all is well. Does any one know if there is any hope for pv?</p>
Replies to "I was diagnosed with pv and put on hu plus baby asprin. Had a few phlebotomy..."
I have had pv for over a year and on hydroxyurea and blood thinners.In the beginning blood drops every week for 3 months and then numbers came down .from 12 hydroxyurea pills a week now down to 3 a week .It takes time for Doc to balance it all out.Be patient and take care.We all go through this and it is a pain.
Hi @bharty615, I moved your post to this active discussion about PV.
- Polycythemia Vera: Just been diagnosed
https://connect.mayoclinic.org/discussion/polycythemia-vera-1/
I did this so you can read through some of the previous posts and connect with other members living with PV.
You may also wish to use the Search function to find more discussions related to PV. For example, see this list:
https://connect.mayoclinic.org/group/blood-cancers-disorders/?search=+Polycythemia+Vera+&index=discussions
How are you doing with this new diagnosis?
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My husband has been diagnosed with PV for 24 years. His has been treated with frequent phlebotomies and medication successfully. His oncologist keeps a close watch on his labs and reviews symptoms every 3 months. There are advances in treatment that can prolong life expectancy so I have learned to only review stats written within the last few years.