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Fibromyalgia -- Need help on how to handle severe pain

Fibromyalgia | Last Active: Oct 29, 2023 | Replies (156)

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@ripley

Thank you. How long have you been taking this nightly, as I read it shouldn't be taken long term? Did you have any push-back from your Dr before they prescribed this?

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Replies to "Thank you. How long have you been taking this nightly, as I read it shouldn't be..."

I'll repost what I wrote in a prior response: Three weeks to 3 months is a guideline for this medication, with time off it for a few months, then resuming as needed. I've been on it for many years (since 1990's), 10 mgs nightly seven days per week. I have regular checkups with rheumatologist and primary care physician, as well as periodic cardiology visits and full blood work.
No issues. It is a muscle relaxant, so the one concern is not taking more than what is prescribed and okayed because (as one doctor said) the heart is a muscle and you don't want to create issues with that organ in particular. You can't just self medicate with this muscle relaxant. I can't take amitriptilyne. Was on it and had to be "weaned" and released from it. Can't take other usually prescribed meds such as Lyrica, Cymbalta, etc. So cyclo it is for me. I didn't request it of the doctor that diagnosed the fibromyalgia, she prescribed it. I've had three rheumatologists since then (two retired) and each approved of the medication and dosage. One was in private practice, had been an internist as well as a degree in pharmacology, and absolutely knew his stuff. Incorporated specific supplements to ameliorate issues like inflammation, Raynaud's and neuropathy, and emphasized the important role that nutrition has. I was so sorry when he retired, but he went on to teach at a medical college in NYC, using his wealth of knowledge and experience to impart onto future rheumatologists. Two of my former rheumatologists okayed taking more than one does if in extremely painful flares, but I found that I became a drugged zombie with inability to focus and stay awake the following day. So that is not something that I'd do ever again. One dose of 10 mg nightly is all I need. I am baffled by your doctor's adamancy. Perhaps he/she is concerned about how the medication may impact aspects of your medical issues.