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@californiazebra

I have internal vibrations from my hereditary neuropathy. I've been on atenolol, a beta blocker for high blood pressure, for 25 years. My internal vibrations and fasciculations I'd had for many years suddenly stopped for 15 years and I always wondered why. I didn't make the connection until I stopped taking atenolol for only a week a few years ago and the massive twitching (50+ at a time), muscle jerks, horrid foot/leg cramps, internal and external tremors went nuts. I started the atenolol again and it all improved about 75%, but never completely stopped again.

Now, cancer meds have caused low blood pressure and low heart rate which is the same thing atenolol does so that's a problem, but I've been afraid to stop the atenolol again. So I cut the dose in half to test the neuro issues. My blood pressure and heart rate have gone up closer to normal so that's good, but immediately all the fasciculations doubled including in both eyelids at once and the internal tremors started up again. No increase in cramps or muscle jerks luckily. Of course, it's all most noticeable when trying to rest. The internal tremors remind me of those beds they had in hotel rooms when I was a kid that you put in a quarter and it vibrates. Very annoying when there is no off switch. I would love to go off atenolol completely, but I don't dare.

My real point in all of this though is that the minute the internal tremors started throughout my body, it made me feel like I'm anxious, but the tremors are just fooling my brain. So when doctors tell so many of you that your tremors are nothing more than anxiety, my question would be, "which came first, the chicken or the egg???" Even if you are prone to anxiety, that doesn't mean that's what is causing your tremors. Hmmm. Good luck to all. I feel for you.

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Replies to "I have internal vibrations from my hereditary neuropathy. I've been on atenolol, a beta blocker for..."

I thinki havewhat everyone is calling internal vibations. It feels like your muscles want to keep moving. like when you were a kd and you would go roller skating for hours and then when you took your skates off you had a weird sensation. I got diagnosed with hereditary spastic paraplegia but the calcium and potassium channel ions are responsible for carrying the instructions telling your muscles when tostop. there are a lot of things that cause this. Mine was found by a mitochondrial genetic test. look into the ion channelopathies. good luck to ya