Second opinions from Mayo Clinic
Last year a targeted biopsy showed 3+4=7 cancer in less then 5% in one core. My urologist wanted to operate. I went to a radiologist he told me it was barley a 7 it could be watched or he could do 5 sessions of radiation. So I went to a 3rd Doc to get a consensus and he wanted to put me on Casodex. I decided to watch it. I got a second opinion of the biopsy at John Hopkins they reduced it to 3+3=6. My second biopsy came up negative. I live 5 hours from Mayo clinic in Minn. Because I could not get 3 doctors to agree on what to do would it be a good idea to drive up to Mayo top get a second opinion on watchful waiting?
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@rice, here's a link to submit a request for a second opinion at Mayo Clinic: http://mayocl.in/1mtmR63
Let me know if you have any questions.
I see Collen sent you a link to get another opinion. I think Mayo would be a great place to get another opinion. And you say Rochester which is main campus and most specialist of any Mayo location.
Hard enough having prostrate cancer and having to deal with getting so many different opinions. Did you have a Decipher test. It is done independently of providers and provides a genetic level diagnoses. If you go to Mayo asked for it. The biopsies you had done can be used to send to Decipher. Not sure where you had it done but Decipher used the already biopsies that Mayo took.
They sent off the biopsy for genetic testing but it was to small to test
Total PSA 7.2 Free PSA 1.9 for a ratio of .26. Family history of prostate cancer. I'm 69 years old. According to the chart I only have a 12% possibility of cancer. What do you think?
I recommend that you chat with your doctor Maybe something maybe not We are all lay people here
A, I agree with @hbp
B. ...and yes, if you think you need a second opinion, you should absolutely go get one.
I believe I may have read that you might be able to get one from Mayo by sending all your records and test results to their specialists and get one. (not sure of the process to get that started though) You might try searching for it here or perhaps @colleenyoung could chime in and let us know if I'm correct or not and how to get rolling.
If what I suggest isn't possible, I wouldn't let traveling to a cancer center deter you from getting a second opinion if you decide you'd like one.
PCa is treatable and time is on your side, so good for you for taking action. Knowing more of your overall PSA history would be helpful to learn more about the velocity, and also if you are experiencing any symptoms with non-PCa conditions. At age 69, you fall into that old-school mindset that "everyone has prostate cancer by the time they are 70, but rarely does it kill you" however I can't imagine sitting still and ignoring it. --- A balance of self-education and health care professional review is part of your immediate future. Keep The Faith.
quillian02: Not sure if you went to a urologist at the behest of your GP and they suggested something but whatever you do, get another opinion from a doctor at a center of excellence. PSA trend and the number is an indication of "something" potentially, including a possible infection or cancer. Don't depend on one opinion.
My first step at 69, about a year ago, with a rising psa to 10.2 was a prostate MRI. They saw something and then I had a biopsy with a Decipher test thereafter using the biopsy material to judge aggressiveness and the doctors use this test to evaluate as well. My choices given to me were radiation or prostate removal. After that, more research on specific treatment machines and doctors and opinions from five radiation oncologists. I too came to Mayo Connect early on. One step at a time.
Here are additional places to research:
Nccn.org
Many doctors follow their guidelines, and it is there for doctors and patients
Decipherbio.com
Takes a slice of the biopsy which helps evaluate aggressiveness and modes of treatments
Myriad.com
This spit or blood test evaluates 48 of your genes and 11 types of cancer that can impact your son or daughter (breast cancer). If you have a brca gene then your daughter may need to be tested.
Elekta.com
MRI/Radiation machine combination unit with real time imaging not fused images
Mevian.com
Proton therapy radiation machine
PCRI.org
The Prostate Cancer Research Institute helps men and caregivers research their prostate cancer treatment options
Welcome @quillian02, if you would like to get an opinion from Mayo Clinic prostate cancer experts, you can submit a request here: http://mayocl.in/1mtmR63
Mayo Clinic also offers genetic testing and counselling.
- Cancer Genetics Clinic https://www.mayoclinic.org/departments-centers/clinical-genomics/overview/specialty-groups/cancer-genetics-clinic
I think that a MRI and if anything found then a Fusion guided biopsy are needed expeditiously to reach a treatment / no treatment decision point.
Best wishes for good health.