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@normahorn

I am not trying to diagnose or develop a treatment plan nor advocating that anyone should do that. I am fortunate in that my oncologist called me or scheduled appointments for very shortly after test results should be available. That is not the case for marytheresacll who is left hanging until sometime in December. I would find that completely unacceptable if it happened to me. Two months!!!!!

Also, some of us have learned that the responsibility for reading reports and making sure our doctors are aware of key issues falls on us. That is not the situation with my oncologist but is with another doctor.

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Replies to "I am not trying to diagnose or develop a treatment plan nor advocating that anyone should..."

Thank you for your information njhornung. It is sometimes hard to ask the right questions from the doctors, when you don't have the knowledge. My doctor is doing some kind of genetic testing so hopefully it is the FISH test. I will definitely ask for the names of all bloodwork tests that have been done so far and probably try to insist on a few more tests. Our system in Canada is kind of broken and it is hard not to feel like just a number sometimes. Thanks to this forum I will be able to ask more knowledgeable questions. It is baffling to me that my wbc and lymphocyte counts have never leveled out and only continue to rise as normally there seems to be some time where things just kind of stay the same, but not in my experience. The answer is always, well you do not have swollen glands or spleen. So as people say here, you have to fight for yourself so going forward there will have to be more of that. Njhornung, how long have you had cll? How are you feeling?