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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 21 hours ago | Replies (7049)

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@kathyv

@janetdh
This is @kathyvienna. It was interesting reading your postings about your CRPS. I developed CRPS in 2008 after I had back surgery. It started in my right foot and has gone up my rt. leg. I haven't found anything except oxycontin, cymbalta, lyrics, alive. My pain dr. has discussed the possibility of putting in a pain pump with fentanyl. Have you ever heard of that. There doesn't appear to be much out there. So discouraging.
Kathy

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Replies to "@janetdh This is @kathyvienna. It was interesting reading your postings about your CRPS. I developed CRPS..."

Oxycodone is the only thing that takes the pain away from my right ankle. Unfortunately, I would agree. The medical community has limited options in terms of treatment as well as understanding how CRPS progresses as it is unique to each individual. Very frustrating and depressing knowing it is affecting more areas of my body and not knowing what will happen next. A friend of mine found a site that has some good info--The Princess in the Tower. Think it is out of England. To help make some kind of meaning out of what has happened to me I try to advocate on the challenges of having chronic pain and CRPS. All the best to you on your own journey!

Hello @kathyv. If you would like, you may want to join @janetdh and other members discussing CRPS here, After knee replacement I developed severe RSD, http://mayocl.in/2cX10nN.