Struggling with making an osteoporosis treatment decision

My endocrinologist said that many people make bone gains with Prolia as well, even though it isn’t technically a bone builder. Have you heard that too?

had 1 prolia shot had a severee reaction that has lasted very long yes it is not as painful as the shot leaves your system but i wonder if it ever reallyy leaves. my dr wants me to take eventity but another shot i am afraid i can not go tthru anymore pain i have had 2 compresion fractures while on prolia one 6 wks after shot and the other 2 12 months after stopping tymlos may be a good choice very confused don't know what to do but i can not have another fracture

Have you tried Evenity ? That is one of the bone building meds .

My doctors won't use Prolia unless every other medicine is somehow not possible. It is hard to get off without losing bone and increasing fracture risk. And it is not a bone builder, meaning it may increase density by affecting bone turnover as an anti-resorptive (osteoclasts) but doesn't build bone (osteoblasts). It has to be followed by Reclast or Fosamax and the timing of that, according to my docs and McCormick's new book "Great Bones," is very very tricky.

Forteo, Tymlos and Evenity are bone-builders and Evenity also has some anti-resorptive qualities.

@lynn59, yes my dear I have read that about Prolia. Was it especially for men? During my time on Prolia, there was no evidence of bone growth.

May you be safe, protected, and free from inner and outer harm.
Chris

In reply to Pennykj:

Hi. A while ago you sent me a link to Margaret Martin—thanks so much!— I didn’t reply earlier as I had a virus. Best regards

Thank you for your kind response.
I’m not going to begin anymore meds for osteoporosis
again. I’ve tried every one of them & the side effects weren’t worth it. I walk, am average weight ,researched best supplements to use & yet the scans show worsening bone loss.
I have PN now too . You Tube videos are very interesting with different drs’ & their views of osteoporosis.
Medication can take us in an unhealthy circle.
Hope you get a chance to check some out.
Best of luck.

I also have opted not to take bone building drugs. I saw an orthopedic last week for an unrelated condition to osteoporosis and discussed osteoporosis with him. He said not to take the drugs. So that made me feel way more comfortable with my decision than anyone else has.

Could you share your DEXA scores? I don't want to take bone drugs but my endo Dr said I should start Prolia.

I also struggled with this decision. I took Actinel for about two and a half years but I finally stopped because of side effects. I saw a number of different specialists--endocrinologists and rheumatologists. Most wanted to prescribe Forteo, a bone building drug which you self-inject daily for two years. I fought that for several years. I also knew that once I stopped the Forteo (it can only be taken for two years) I would begin to loose the bone that had been built. (That was a big concern for me.) The plan was to then switch to Prolia to maintain bone as best as I could. However, after fracturing several vertebrae (painful), I was warned that things were only going to get worse. I came to a decision that at this point in my life, the benefits would outweigh the possible side-effects. So, I did two years of forteo and yes, I did experience some side effects like low back pain and some knee discomfort. That went away when the treatment was over. I was then put on Prolia which I continue to take and have had no side effects that I'm aware of. Decision making on medication is a personal one. I found so many reasons not to do it. But in the end, I decided I didn't want to continue vertebral fractures, the pain and all the limitations that resulted. The Dr. who performed my kyphoplasty said that one of my vertebrae was like an eggshell. I don't believe my spine was going to support me long term. Weigh each side carefully. Read credible research and information only. Get second and third opinions, but in the end, the decision is yours.