Hello @jrwilli1,
I am sorry that your husband's situation is so difficullt. I can only suggest that from my brief time with MDS, it does bring nothing but uncertainty. I was diagnosed one year ago, and must admit feeling pretty discouraged, even depressed, and expecting a relatively quick "exit". I am 76. But over the past few weeks, I simply decided that I was going to live another 10 years. I am too old to get a transplant apparently, but in any event, I will keep living... So I encourage the two of you to hope for the same, and even more! I thus encourage you to follow the medial advice at this time...