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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: 4 days ago | Replies (2974)
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@lastnerve

I have PN from the waist down, from nerve damage caused by a tumor in my spine. Tumor was removed in '05, but the damage persists. I tried gabapentin, which just gave me a weird feeling in my legs (which are the most affected part), and lyrica (lowest dose), didn't seem to do anything. What I found out helps tremendously: exercise (low impact, staying well hydrated and taking magnesium pills every night before bed. If I don't, I get a burning sensation on my feet, and like electricity is running through my legs.

I see ads for new "cures" or solutions, but haven't tried any of them. If anybody has found a treatment that works, rather than masks the symptoms (like gabapentin, etc), please reply, or post it here. Thanks

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Replies to "I have PN from the waist down, from nerve damage caused by a tumor in my..."
John, Volunteer Mentor | @johnbishop | Oct 20, 2023

Hello @lastnerve, Welcome to Connect. Most of the treatments I've seen just mask or provide relief for the neuropathy symptoms. There really is no cure for neuropathy as far as I know. There are a lot of complementary and alternative treatments that people have found helpful. The Foundation for Peripheral Neuropathy has a list on their website here - https://www.foundationforpn.org/treatments/.

You mentioned exercise along with staying hydrated and taking magnesium pills before bed at night help with night time burning sensation. There is another discussion you might find helpful on the topic here:
--- Neuropathy Pain at Night: What helps?: https://connect.mayoclinic.org/discussion/night-pain-2/.

Another thought I had since you mentioned it started after a tumor was removed in your spine and exercise seems to help, you might want to look into Myofascial Release Therapy to see if that might help. There is a discussion on MFR with more information:
--- Myofascial Release Therapy (MFR) for treating compression and pain: https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/.

Have you heard of Myofascial Release Therapy?

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