Thank you so much for your response.
To your question #1. Yes, I have symptoms and no diagnosis.
To question #2. Yes. Have been to ER July 28, August 24, Sept. 30. They did run blood work/Standard Urine sampling. Yes, I expressed my symptoms in detail & how long I have had them. They are going on standard blood tests.
Question #3. No, I have not seen any specialist's, only my DO at my clinic. DO put in referral for Neurology. They are still "Triaging" my case. I was told it could be 4 months or longer before I get an appt. They will call.
Question #4. Yes. Some tests are normal, and some slightly out of range. I intentionally question every single number out of range and ask why and IF they are concerned. The answer has been, "Not concerned". I go through my labs with a fine tooth comb.
Question #5. Yes. I have turned to "The internet of things" for my answers. I feel I have no choice.
Question #6. Yes. I am scared, confused, I am convinced I do have MM, which I told my Doctor in my appt. She said "You do not have MM, how can I help you to get that out of your mind?" I was stunned she told me this with NO required tests to deny or confirm MGUS, SMM, or MM. This scared me because this proves she knows NOTHING about MM. I desperately want a better Doctor, but I am stuck as of now. Jan. I see a new doctor and different clinic.
Yes, you have it right. In reel time this is how it is. I feel I am in a living hell. I feel like absolute shi*t and the Medical people do not give a damn. ~