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Chronic Pain members - Welcome, please introduce yourself
Welcome to the new Chronic Pain group.
I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Why not take a minute and introduce yourself.
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Another note: my pcp told me that he could no longer prescribe opiates if I start mm, but the pain specialist said taking mm might reduce the amount of morphine sulfate I'm taking.
Jim
Jim, I know that finding the right MD is the toughest part of chronic illness. My serum FreeLightChain protein in the blood was running at about 250 mg/24hr, back in September, which means FLCDD. And I have high eosinophils, and anemia, and biopsy proven cancers in prostrate, stomach, esophagus, thyroid, and proven amyloidosis in my eyes, skin, and very bad edema in R leg and foot, with a large thrombus in the lower lobe of each lung, with kidney and liver failure. Yet my doctors refuse to do another FLC test. All this proven by Mayo. and cortex white matter deposits. I am now in the search for MDs who will take this setup seriously. Where do I go next?
@carolinapearl53 I have to add that the first lie of medicine that I found was that there is no such thing as pain free, pain medicine at best reduces pain and makes it more tolerable. I have found fentayl patches to be the most helpful for me, but they do not work on all types of pain. As I have said before pain suffers need to get together and file group lawsuits or the families of pain suffers after the family member dies from lack of proper care. 19lin
What's your chief complaint? I suppose you've seen various specialists. If I were in your place, where I would want to go would be easy - Heaven! No more lists of illnesses, doctors or meds. That's what I'm looking forward to.
I've been fortunate to have had some good doctors, including a pain specialist.
jim
I'm Paul from NYC suffering with posthepetic neuralgia for almost 3 years.
Had the Nevro spinal cord stimulator implanted 4 months ago, has helped
some, still getting night pain so I can't really sleep so called normal hours.
They are weening me off Fentanyl 75 mg now 12 mg I ran out of Tramadol
cant get it till first week of Feb. Still Take Lyrica 300 mg 2x a day,,Duloxetine
30 mg 1x day.
Pain is now in my neck and right shoulder
On my 4th pain dr he seems to be care and is encouraging.
That's my story
Hope they find something to help us all
Hello Paul. Thank you for the update on your spinal cord stimulator and what is happening with your pain meds.
You may want to also pop in to the discussion Postherpetic Neuralgia here, http://mayocl.in/2iiJEo7.
@gailb I did the epidurals over a time period of 6 years. I felt like a pin cushion and "guniea pig" with all the different procedures after a while. I'm not a good canidate for surgery at this time. My husband and I are about to relocate to Florida so I have been holding off on any other procedures.
Actually, I believe that the opioids are no longer effective. I was warned by a surgeon about 7 years ago that if you take them too long, they won't work when you really, really need them. That is where I am and have begun a program to wean off gradually. I will just have to deal with the pain I have. So within 6 months or less I will really know how much pain I do have.
I concur that the opiods are less effective for me now, after 15 years, and that I would benefit from a dosage increase. In my situation, I do not respond to pain preventives or the usual pain abortives for my condition. Going without opiods would confine me to bed at least 5-6 days per week. As it is, I take opiods only twice per week, which allows me limited hours being upright and functional, without immense pain, vomiting, vision problems, and extreme dizziness and vertigo. My pain level averages 8 on a 0-10 scale; 9 sends me to the ER. For me, I would question the value and point of my existence without the few hours per week on opiods, which take the edge off my pain, to a more manageable 6-7. I hope and pray that you are able to wean yourself off opiods. I have decided that is not an option for me, and I will continue to self-advocate for better pain management. I appreciate and take to heart your thoughts. I wish you all the best.
A few months ago, after I started Cymbalta, I wondered how much Cymbalta was doing, so I weaned off morphine sulfate contin 90mg/day. I gave myself 3 weeks off morphine, and went back to morphine because the pain was too much. But, so far, I only take 15mg tid, half of what I was before. I plan to ask the doctor to increase the midday dose to 30mg , hoping that afternoon and evening will be more tolerable. I still have a few more things to try, so I'm still holding out hope.
Jim
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