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Needing help understanding ET and how it affects my life
Blood Cancers & Disorders | Last Active: Oct 29, 2023 | Replies (29)Comment receiving replies
I agree about your remark about anxiety. I sat for about a month emotionally paralyzed, until I spoke to a friend, who gave me a kick in the butt I needed to get moving. Luckily I live in NYC and have MemorialSloanKettering a short bus ride away. It was sort of a second opinion appointment, but when I met the Dr and NP, I knew I wanted them to take care of me, and they never failed. Maybe if you have to travel to an good cancer facility, they can start you off, and then a local Dr can monitor your blood locally. best wishes.....v
Replies to "I agree about your remark about anxiety. I sat for about a month emotionally paralyzed, until..."
I have heard that that can happen--specialist provides care protocols/parameters for local docs to follow through on. It would be worthwhile asking the GP if that can be arranged.
In the UK, care is set up that way routinely. Talked to a guy in a remote Welsh village whose local doc consulted with Claire Harrison, the big name in MPNs in London, and her office provided a care plan for him. Patient was elderly and never had to leave home.
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That would be nice. I just keep getting referred to the same center and my family wasn’t one for keeping up with doctor or dentist appointments so navigating everything medically is really confusing. I don’t know what I’m allowed to do or ask for or what’s even possible. This thread has been very helpful.