1. < Digestive Health

Microscopic colitis

Posted by bobthebuilder54 @bobthebuilder54, Oct 12, 2011

Hi, wondering if anybody here has this for a dx. I have been having a flare for about two months, it is getting a little better with the meds but the doctor wants me to go on a short dose of steriods. I already have a muscle disease so hate to go the steriod route, (plus do not need to gain weight) lol. But if anyone has any hints for me I would appreciate it on how to control this. It is the longest flare I have had.
Susie

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Gabriella | @gabriella | Nov 27, 2011
In reply to @gabriella "Hi Susie google "microscopic colitis support" for a well established online support group related to MC...." + (show)
@gabriella

Hi Susie
google "microscopic colitis support" for a well established online support group related to MC. The url is http://www.perskyfarms.com. They encourage gluten-free diet and have lots of recipes and information regarding what is gluten-free and what is not. Casien, the protein in milk, is usually the #2 offender for people with MC (gluten being #1), followed by soy and then eggs. IMHO soy is more prevalent and hidden in our foods and therefore more difficult to eliminate from the diet than gluten.

Some people have good results controlling their flares using Pepto Bismol and/or Immodium. Some take Entocort. But I think, and this is just my opinion, that the drugs just mask and control the symptoms. Ultimately people who change their diet to get rid of their food sensitivities are able to get control without drugs. It can be done. But everyone has their own path to take. The first step is to control the D.

I went gluten free about 6 mos ago and it was a big adjustment, but you get used to it. And the results for me have been dramatic so I'm not tempted by bread anymore.

Best of luck. You can get your life back.

Gabby

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Hi DebE, I noticed a drastic improvement after about 6 weeks in my symptoms after going GF. From what I gather on the Potty People website (http://www.perskyfarms.com/phpBB2/index.php) everyone has a different time and path to remission. I suspect the time it takes depends on the amount of inflamation and irritation in the bowels one starts out with. Just because you don't have full blown celiac disease doesn't mean you don't have a gluten sensitivity. And there may be other foods that you are senstive to as well. Hope you get some relief soon.

REPLY
gluten-freecuredmycrohns | @glutenfreecuredmycrohns | Jan 6, 2012

Have you tried a gluten-free diet?

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mkzpony | @mkzpony | Oct 10, 2012

I was diagnosed with Celiac 2 years ago, and have been completely free of GLUTEN, however I was just now diagnosed with Microscopic Colitis, which sometimes goes hand in hand with Celiac. So no gluten for 2 years, so some of this does not ring true. I am now going to an acupuncturist next week, that has helped me with other problems, to my amazement, I will keep you posted. I also was on prednisone 3 times after being hospitalized in Feb. and I have read articles it could contribute to MC.

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1 reply
jt55 | @jt55 | Oct 20, 2023

I have been on a very low dose of steroid for almost a month. This steroid is so mild. You do not have to worry about gaining weight on it. However, it is a steroid. I find it it seems to help, however, certain things will trigger the colitis for me. Caffeine, alcohol, certain supplements.

REPLY
jt55 | @jt55 | Oct 20, 2023
In reply to @mkzpony "I was diagnosed with Celiac 2 years ago, and have been completely free of GLUTEN, however..." + (show)
@mkzpony

I was diagnosed with Celiac 2 years ago, and have been completely free of GLUTEN, however I was just now diagnosed with Microscopic Colitis, which sometimes goes hand in hand with Celiac. So no gluten for 2 years, so some of this does not ring true. I am now going to an acupuncturist next week, that has helped me with other problems, to my amazement, I will keep you posted. I also was on prednisone 3 times after being hospitalized in Feb. and I have read articles it could contribute to MC.

Jump to this post

Please let us know how you make out with the acupuncturist! I am very interested in trying this.

REPLY
justtoday | @justtoday | Oct 21, 2023

I was diagnosed in 2018 with microscopic colitis. Suffered with all of the typical symptoms until i heard the SSRI, fluoxetine (prozac) I was taking, was causing the problems with MC. Stopping the antidepressant worked! Now however, every antidepressant I’ve tried since brings back the colitis. Have any of you found treatment for depression that does not wake up the beast? Any increase in serotonin makes the colitis bad.

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