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Anyone stop valcyte early?

Transplants | Last Active: Dec 4, 2024 | Replies (14)

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@hello1234

Hi @myringo 😊
Do not worry, all will be well. This is the normal process to find the perfect immune suppression "cocktail" that avoids both rejection and infection. It's a slow tweaking process of taking labs and slowly adjusting.
This was my exact scenario!
I had the 30 day Prednisone taper, just like you.
I started with 1000 mg of Mycophenolate twice a day, just like you.
My TAC range is 6 to 8, just like you.
When I became positive for CMV, my Mycophenolate was reduced to 500 mg twice a day and I took Valcyte to treat the CMV.
The CMV resolved and a few months later I was positive for BK virus (which meant I was still over-suppressed) so my Mycophenolate was reduced to 250 mg twice a day.
Now, all is well at my current medication combination.
My WBC recovered and is in the low range, no CMV, no rejection, low BK.
What did Transplant say about your new WBC result?
Is the plan to take your labs again next week or make a med change?
Is your TAC blood level result in range?

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Replies to "Hi @myringo 😊 Do not worry, all will be well. This is the normal process to..."

My Dr lowered my microphenolate to 500 mg twice daily. I get labs twice weekly. Waiting on my new tac result today. Last Tac was an 8. Just trying to stay calm and breathe and take one day at a time