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Anyone stop valcyte early?

Transplants | Last Active: Oct 20, 2023 | Replies (11)

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@myringo

I am not on prednisone just tac and mic. I was on prednisone taper the first month. I am really hoping to avoid the infections but from what I’ve read I’m pretty high risk for it. One day at a time and trust God is what I strive to do but sometimes my anxiety creeps in.

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Replies to "I am not on prednisone just tac and mic. I was on prednisone taper the first..."

Hi @myringo 😊
Do not worry, all will be well. This is the normal process to find the perfect immune suppression "cocktail" that avoids both rejection and infection. It's a slow tweaking process of taking labs and slowly adjusting.
This was my exact scenario!
I had the 30 day Prednisone taper, just like you.
I started with 1000 mg of Mycophenolate twice a day, just like you.
My TAC range is 6 to 8, just like you.
When I became positive for CMV, my Mycophenolate was reduced to 500 mg twice a day and I took Valcyte to treat the CMV.
The CMV resolved and a few months later I was positive for BK virus (which meant I was still over-suppressed) so my Mycophenolate was reduced to 250 mg twice a day.
Now, all is well at my current medication combination.
My WBC recovered and is in the low range, no CMV, no rejection, low BK.
What did Transplant say about your new WBC result?
Is the plan to take your labs again next week or make a med change?
Is your TAC blood level result in range?