← Return to Essential Thrombocythemia: Looking for information and support

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@rubles

I was diagnosed with thrombocytopenia. Is this different from thrombocythemia? I have weird things going on physically. Diagosed with kidney disease and I have ostomy and much more. I would greatly appreciate it if I can be directed to helpful information. Thank you,Pamela Also the doctors don't explain and call me too complicated because of all the medical issues I have.

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Replies to "I was diagnosed with thrombocytopenia. Is this different from thrombocythemia? I have weird things going on..."

Hi @rubles, Both thrombocytopenia and thrombocythemia are conditions relating to platelet levels in the blood. One is too few platelets. The other is a condition where there are too many. Both have their own set of issues.

Here are the differences:
~Thrombocytopenia is a condition where you have a low blood platelet count.

https://www.mayoclinic.org/diseases-conditions/thrombocytopenia/symptoms-causes/syc-20378293

https://www.verywellhealth.com/what-is-pancytopenia-2249143
~~~~~~
~Thrombocythemia is a disease where your marrow makes too many platelets.
https://www.hopkinsmedicine.org/health/conditions-and-diseases/thrombocythemia

I know that you’re dealing with quite a few health issues at one time which can certainly complicate your treatments. Have you considered trying to get an appointment with a larger university or teaching hospital, or Mayo Clinic where doctors tend to work collaboratively in each specialty to find answers to your health problems?

Here’s a link to request an appointment with Mayo. http://mayocl.in/1mtmR63

Another option depending on where you live. Mayo Clinic has Care Network Members where they work with some clinics across the country who meet with the standards set by the Mayo Clinic. Here’s the map showing the facilities. See if there is one near you.
https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members

Is the Thrombocytopenia a new diagnosis? How are you doing with the kidney disease and your ostomy? How long ago did you have the ostomy surgery?