← Return to Liver Transplant to Treat NETs

Discussion

Liver Transplant to Treat NETs

Neuroendocrine Tumors (NETs) | Last Active: Oct 25, 2023 | Replies (20)

Comment receiving replies
@millds

Hi,
Great questions. I was 64. It was not a “choice” that was planned for in advance. Resection surgery for NETS resulted in failure FOR ME of my liver and thus my kidneys. It was a supreme effort chosen in an attempt to save my life. Praise God it worked.
Please know I am forever grateful for my donor and doctors. I have had 6 incredible years, but it is not a cure. It can return at any point. I am monitored very closely, but due to anti rejection meds, I am also more susceptible to other cancers. Research and in depth discussion with Dr. Is very important when starting down this path.
Would I do it again? In my situation with hours to live and the gift of the last six years? Yes. Is it easy? No.
It may limit some treatment options as well.
The criteria can be found on line and is relative to your center. You have to live within a
few hours of the center.
Best of luck !

Jump to this post


Replies to "Hi, Great questions. I was 64. It was not a “choice” that was planned for in..."

TY for sharing. I'm 55 and I think I could be a candidate. My Dr skirts the issue and my medical professional sibling tells me it's a last resort. Your information is helpful. I'll keep you in my thoughts and prayers. 🙏