I hope you can make some progress. Just remember that -- like doctors, hospitals, etc. -- not all social work support is equal. A research institution can often have better support staff -- with wider experience -- than local practices, but you might be pleasantly surprised. And sometimes the level of support varies by practice even within the same medical system.

Medicine tends to have more gate-keepers than bridge-builders, but that doesn't mean that there isn't someone, somewhere who knows the optimum route. The hard part is finding them esp. when life is full already.

Even though he's relatively young, if there's a relatively close-by equivalent to a "Council for Aging" or the like that provides different kinds of counseling -- financial, Medicaid/Medicare, and medical -- they also might be able to help a lot on the resources front due to the experience they're likely to have. He may not be elderly, but he is -- like all of us -- "aging".

He's lucky to have a friend like you. Good luck and hang in there. And if you can, you may want to find someone you trust for your own counseling. It can be re-assuring to have someone else as a source of ideas, esp. if they've got experience dealing with the medical system. Not to mention to have an outlet for dealing with the ups and downs of all you're doing.