Replies to Good afternoon. My daughter was diagnosed with FM In June of this year. As of now,…

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Lung Health | Last Active: Oct 20, 2023 | Replies (41)

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@pcipriano

Good afternoon. My daughter was diagnosed with FM In June of this year. As of now, she has none of the issues that I see in this group. However, she has varying degrees of pain in her back and now chest. Today, the pain was so severe she could not work. Has anyone had this pain that can share their experience. Also, We have tried the Cleveland Clinic, Mayo Clinic and Vanderbilt University. We can't get her in to any of these until March. Based on her pain today, I would like to somehow get her to the front of the line. Does anyone have any thoughts? Thank you all!

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Replies to "Good afternoon. My daughter was diagnosed with FM In June of this year. As of now,..."

Teresa, Volunteer Mentor | @hopeful33250 | Oct 19, 2023

Hello @pcipriano and welcome to Mayo Connect. I can understand your concern for your daughter. From what I've read, this is a rather rare disorder.

It certainly would be a good thing to have her seen at one of the medical facilities you've mentioned. It is frustrating to have to wait for an appointment, especially when there are active symptoms.

Have you considered calling back each of these facilities on a regular basis to see if there have been any cancellations so that your daughter can get an earlier appointment? Many of us have done this and it can often be helpful.

In the meantime, I suggest that you learn as much as possible about this disorder and try your best to relax (easier said than done, I know)!

If you are comfortable sharing more, how was your daughter originally diagnosed with FM? What sort of symptoms was she having?

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