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Synovial sarcoma: what treatments might I expect?
Sarcoma | Last Active: Aug 8 4:31pm | Replies (14)Comment receiving replies
My Synovial sarcoma began in my calf in 2021. I had it removed twice, 18 months apart. Had 25 radiation treatments after first removal. After 2nd resection, it had metastasized to my lungs. I opted for no chemo or other chemical treatments - chose quality of life (I’m 75). I was told the cancer in the calf had to be removed before a resection of the metastasis in the lung…and the only way to get it all was to amputate below the knee.
I’ve been doing some immunotherapy, which I believe as slowed the growth.
I’ve been feeling great, living life fully and am happy for the last 9 months. In the last couple weeks, pain is becoming prevalent in the calf, but control it only with Aleve.
At my stage in my life, I believe this was the best decision.
I wish you happy research and that you will feel confident with your decisions.
Replies to "My Synovial sarcoma began in my calf in 2021. I had it removed twice, 18 months..."
I am waiting test results but I really think I have some kind of soft tissue sarcoma. I woke up lat Tuesday morning with a large lump on my left thigh and by Friday I had small lumps on my left and right forearm. I Will be 76 in 12 days and at this stage I really just want to enjoy life. It's been good so far. All the women in my family died between the ages of 75 and 80. Especially if it is in both my arm and leg. I understand how you feel and thank you for sharing.
Copper 23
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My son was only19 years old when he was diagnosed. It is a hard decision to make. he was followed very closely for 5 years. We were told that if there were a recurrence it would be in the lungs. God Bless you Ellen, you sound like you have thought honestly about your treatment. and thank you for sharing your story.