Chronic Pain members - Welcome, please introduce yourself
Welcome to the new Chronic Pain group.
I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Why not take a minute and introduce yourself.
Interested in more discussions like this? Go to the Chronic Pain Support Group.
Thanks so much for taking the time to respond; I do appreciate that. I am on 2 antidepressants, one of them being Cymbalta...have been since before this unbearable pain started. We're a small rural town in Idaho so some resources aren't available. I agree the right movies help, as does playing cribbage and pinochle. I have partners right here in the house. I do try to walk outside each day and to interact with the others on assisted living/infirmary floor. Judging from many of the responses I have it much easier than many of you...and I know God is close, cares, asks us "to fill up what's wanting in His sufferings" to quote St. Paul. Guess I'm just new at this...finding it hard to let go of driving, organ playing, reading, being involved with the direction setting part of community and dr. appts with lots of tests that don't say anything are exasperating. I do thank God I have drs. who care . Hope you have a blessed Thanksgiving, Sister
I take tramadol doctor prescribed it for me saying I could take it every six hours for pain if needed. She was giving me a two week supply. I have osteoarthritis in all my joints sever scoliosis and have had a THR in April. When I called a few months ago to have it renewed, two week supply lasted me 3 weeks was told I have to make it last a month. Have neck degeneration cannot carry anything more then ten pounds if a do I have a constant headache. Now am having problems with both of my knees. Sit down can hardly get back up. Blamed it at first on the THR. Still recovering from that. Have not been able to walk outside the home without the aid of a cane. I also take an herbal joint aid and Tumeric which has helped with my joints. I only take one Tramadol at night. You are right people don't understand by looking at us. I have tried going to a chiropractor for my back because since my surgery pain has been bad. He has helped somewhat. At my daughters urging I have started going for Reiki sessions which has helped a lot. Come out feeling relaxed and am able to sleep better. Can't believe the things she has told me. Without even touching me she told me about all my problems. Last session told me I was having a problem with my right knee and try to keep weight off it. Next day I went for my Swedish massage and she told me I had a problem with the muscle above the right knee leading to the hip didn't feel that way other months. Told me to try and keep weight off it too. Recommended I see my doctor. Haven't done that yet wanted to do another Reiki session and see what she says. Seemed strange for a Reiki master who didn't touch me told me the same as my therapist.
Thankyou so much for taking time to reply. I agree, the combination of Lyrica and Tramadol take it down to the bearable stage. I'm lucky I live in a rural area and have a very understanding family dr.I admire your courage and perseverance and hope you have a Thanksgiving that's joy filled and peaceful. meggie
Hello,I'm Diana and have a lot of experience with chronic pain.
Hi Lari ,
I'm sorry to hear of your troubles and can certainly relate.I found this website to be be very helpful(if not easy)-
http://treatcfsfm.org/
Experimentation with diet,exercise ,sleep,massage as well as medication can be very helpful-having a chronic disease is never easy.The social aspect can be one of the worst problems we face.Hang in there and try to find something to laugh about-movies jokes whatever you find amusing.Also,(although I haven't quite fiquired it out yet)try to learn to advocate for yourself to your family,friends and Doctors.If you haven't seen it yet the spoons theory can be a good starting point-
https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
Ive had 17 surgeries on my leg after infection with a knee replacement. Long story short the surgeon that performed my original knee replacement would not recognize that the prostheses needed to be removed. Thanks to Mayo Clinic I am alive but ended up with a fused leg. I also have a tronchanteric hip fracture and hip dysplasia on the same side as fused leg. Now I have back problems, nerve impingement and do have nerve ablations done that helps some of the pain. Because of the stress put on my good leg that knee is now bone on bone. I had a scope done a year ago and they removed several bone pieces and most of the meniscus. Ive tried shots but they did not help snd recentlt had stem cell and PRP done on that knee which was an out of pocket expense. I hopeful this will help with the pain. There is not much else that can be done and Im tired of pain pills. My recent visit to Mayo we discussed going through the Pain Rehabilitation Program. Looking for people that have gone through the program
Thanks!
Hello Meggie, did you send this message by replying via email? When you reply by email the message still goes to the active discussion on Mayo Clinic Connect. However, the best way to know exactly where your reply is going when reading messages in an email is to click on the blue "VIEW & REPLY" button at the bottom of the Connect email. When you click on this button, you will go directly to the discussion on Connect so that you can read all of posts and know exactly who you are responding to.
If you have any other questions you can personal message me by clicking on my name and then in my profile clicking on the blue envelope system. By doing this, you will be sending me a private message between just you and I.
Hello @nanke99,
Thank you for sharing your symptoms; I'm so sorry that you are going through so much pain. I've moved your discussion to the Chronic Pain group, as you will see that there are so many members who face the same frustrations as you.
I'm tagging @tbeckys, @blindeyepug, @ladyjane85, @jeannen, @sandytoes14, @swamma08, @dante, @irene5 as I'm confident that they will be able to address your concerns.
Here is another conversation taking place about ways that other members of Connect cope with the pain, http://mayocl.in/2effi2l.
nanke99, please do not feel that your questions are redundant; stay positive, and continue to search for answers.
Hello Diana, and welcome Connect. Here in the Chronic Pain group we have many active discussions on pain and the different causes for that pain. I encourage you to search for topics that are relevant to you and Connect with other members who experience similar things to you. If you need help finding a group feel free to send me a personal message by clicking on my name and then in my profile clicking on the blue envelope system.
Hello, and thank you for the welcome.
Just so you are aware, I received a message intend for Meg? and also a doubled message from the above post-