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Neuropathy & applying for Disability

Neuropathy | Last Active: Oct 26, 2023 | Replies (33)

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@valec

Gotcha. Thanks. Someone here suggested that as well. I truly appreciate all of the suggestions. I have to say - neurologists have not been helpful to me in the past. The last neurologist I saw was 6 years ago when he diagnosed me with bone cancer because the Mspike in my blood was high. And according to him, bone cancer was the reason. Told me I had 3 months to live. (After a crying spell in my car when I left ) Went back to my hematologist who told me the reason my Mspike was high was because my blood count was 5. So after getting iron infusions and subsequent blood work done, needless to say I don’t have bone cancer. The two other neurologists I’ve seen in the past were quacks. They both said I had insignificant neuropathy and they don’t know why I’m complaining of pain.
Sent me on my way without helping me. My General practitioner said neurologists are diagnostic and don’t help people with their issues. They just diagnose. With all that was said, I trotted off to pain management and there is where I stay for the time being.

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Replies to "Gotcha. Thanks. Someone here suggested that as well. I truly appreciate all of the suggestions. I..."

I have been referred to the University of Boston Dr Anna Outlander. She started her research into neuropathy in 2017. I listened to her lecture on you tube. What I dislike is neurologists do not give you the long term prognosis. Small. Fiber neuropathy which is also called autonomic neuropathy affects heart, kidneys, bladder, and stomach gastroparesis. It also affects swallowing and speech. It is very frustrating when the bladder goes and you’re in public. When it starts affecting your bladder I set my cell phone every hour and go to the restroom even if you do not feel like you have to go. That’s been my solution to keep from urinating on myself in public.
Neuropathy comes in many forms since you have SFN you probably have peripheral neuropathy the EMG/Nerve Conduction test have to be given together for positive diagnosis.