@jenhaz, I lived with liver disease for nearly 10 years before I was listed for a liver transplant. After my condition was diagnosed, I was cared for by a fantastic gastroenterologist who also consulted with a liver specialist until my liver deteriorated and my labs and tests indicated that I needed a new liver. At that point, I was referred to liver transplant center where I was evaluated and placed on the transplant waiting list. I was sent to Mayo Rochester where I had my transplant in 2009. I was never terrified because of the competent doctors and nurses who treated me. These were frightening years, however I had the support of my family, friends and my church to support me.
Jenhaz, I received my transplant when I was 60. I have been blessed with a wonderfully healthy life, and am able to do everything that I had done before my illness. If your husband does need a transplant at some point in his life, he will have doctors and nurses who are specialists and who will provide the guidance and care that he needs. Your 'job' and his will be to do what the doctors say to do.

Do you want to 'see' how other patients have to show about their quality of life after transplant? Take a look at this:
Snapshots of hope: Life on the other side of transplant.
https://connect.mayoclinic.org/discussion/snapshots-of-hope-life-on-the-other-side-of-transplant/

As @leonardg posted: "...take care of yourself and do not be shy in reaching out to others or asking for help."
Jen, We are all here for you.