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Hypertrophic Cardiomyopathy (HCM) | Last Active: Jul 24 1:40am | Replies (39)
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in response to auntsusie33 and kam1
I also have HOCM and trouble eating more than about 8 ounces of food at one setting and have lost considerable weight. A doc warned me that the trajectory of HOCM includes trouble eating. Don't know why.
Replies to "in response to auntsusie33 and kam1 I also have HOCM and trouble eating more than about..."
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response to kam1, quinn, et al
Before starting Camzyos I could not eat anything bigger than a granola bar before exertion or I would suffer massive dizziness, chest pain, shortness of breath - the works. I felt so much better when I didn't eat that I ended up losing about 30 pounds. On Camzyos for just under a month now and it doesn't seem to matter what I eat or how much of it - no symptoms at all. Now if I can just keep those 30 pounds away...!