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Trouble eating with HCM

Hypertrophic Cardiomyopathy (HCM) | Last Active: Nov 10, 2023 | Replies (38)

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@quinn

in response to auntsusie33 and kam1

I also have HOCM and trouble eating more than about 8 ounces of food at one setting and have lost considerable weight. A doc warned me that the trajectory of HOCM includes trouble eating. Don't know why.

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Replies to "in response to auntsusie33 and kam1 I also have HOCM and trouble eating more than about..."

response to kam1, quinn, et al
Before starting Camzyos I could not eat anything bigger than a granola bar before exertion or I would suffer massive dizziness, chest pain, shortness of breath - the works. I felt so much better when I didn't eat that I ended up losing about 30 pounds. On Camzyos for just under a month now and it doesn't seem to matter what I eat or how much of it - no symptoms at all. Now if I can just keep those 30 pounds away...!