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Synovial sarcoma: what treatments might I expect?
Sarcoma | Last Active: Aug 8 4:31pm | Replies (14)Comment receiving replies
I'm tagging fellow members who are living with sunovial sarcoma like @emily29 @winter23 @tynerlisa @rgotto41 @ellengrubb @mywimb569 @phuds01 and @janetamyshapiro1956 to prompt them to share their experiences with treatment.
@everythinglucky, what treatment plan is being suggested for you?
Replies to "I'm tagging fellow members who are living with sunovial sarcoma like @emily29 @winter23 @tynerlisa @rgotto41 @ellengrubb..."
My Synovial sarcoma began in my calf in 2021. I had it removed twice, 18 months apart. Had 25 radiation treatments after first removal. After 2nd resection, it had metastasized to my lungs. I opted for no chemo or other chemical treatments - chose quality of life (I’m 75). I was told the cancer in the calf had to be removed before a resection of the metastasis in the lung…and the only way to get it all was to amputate below the knee.
I’ve been doing some immunotherapy, which I believe as slowed the growth.
I’ve been feeling great, living life fully and am happy for the last 9 months. In the last couple weeks, pain is becoming prevalent in the calf, but control it only with Aleve.
At my stage in my life, I believe this was the best decision.
I wish you happy research and that you will feel confident with your decisions.
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my son's cancer was inhis ankle. the Dr recommended amputation and that was 25 years ago. He later had an amputation that went under his knee. He did not have a recurrence but was having a hard time with prosthetic fitting properly. When the first amputation was done the Dr said the cancer was encased and let him opt for chemo or not. he declined and has never had a recurrence. If I may ask where your Ca is located.