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Don't know what to think and feeling uncertain at this point

Blood Cancers & Disorders | Last Active: Oct 23, 2023 | Replies (25)
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@sallylynn

I just sent her a My Chart message. I am past being frustrated. I requested these tests. It has been 3 months. As each month crawls by, if I have MM, it is progressing. She goes by my CBC, Basic Metabolic Panel and Comprehensive Metabolic Panel numbers, so did the Hospital, 3 times. I don't think she knows anything about MM or MGUS or SMM.
Sadly, and frighteningly, the clinic I go to are all at her caliber. She did request a neurologist for me, still no call from them. I called them twice and they say "We are triaging" your case. By the time they call me , it will be 2024. I will say I have been diligently, intentionally leaving a detailed precise "Digital paper trail" on My Chart with ALL my symptoms, my deep concerns I have MM . She is a 4th year DO at this clinic, because she is a Resident, the administrators read all correspondence, her decisions, her diagnosis's of all her patients. Because she flat out told me I do not have MM, and wants to put me on anxiety meds because I am "Worried" about it. This is a true living hell.

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Replies to "I just sent her a My Chart message. I am past being frustrated. I requested these..."
Allstaedt57 | @allstaedt57 | Oct 18, 2023

Please consider shifting it and telling her Monoclonal Gammopathy of Unspecified Significance (MGUS) not MM. See if she can just look at those labs. Which are actually the same for the initial diagnosis for both. She is probably looking at your White Blood Cells (WBC) for a slight indication of immunities, Hemoglobin (HbG), which would indicate anemia, Kidney Function labs, Calcium, and Protein because there are not a whole lot more that those simple labs could indicate in regard to either MGUS nor MM.

By the way, I saw you had disclosed your age of 63, I'm 65, to be 66 next month, diagnosed on 2/15/22.

Personally, I'd go else where - where they are more savvy to this blood disorder. Wish you were able to take a road trip to Mayo😢 Best wishes.

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