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Don't know what to think and feeling uncertain at this point
Blood Cancers & Disorders | Last Active: Oct 23, 2023 | Replies (25)Comment receiving replies
@sallylynn I had very slight neuropathy, no other symptoms. My primary care provider said, I'm going to run the tests for Monoclonal Gammopathy of Unspecified Significance = Immunoglobulins, Light Chains, M-spike, etc. Just blood works, but not CMP, CBC nor BMP they must be more specific to MGUS. They came back slightly elevated and he referred me to a hematologist/oncologist whom I chose. MGUS is the precursor to MM. That's what you might want to ask. Once MGUS is suspected there must be a differential diagnosis to rule-out MM. Then they did a bone marrow biopsy, 24 hour urine test and a PET-CT scan. MGUS was confirmed, MM was ruled-out for now. May be time to get someone more knowledgeable to address your needs. Best wishes.
Replies to "@sallylynn I had very slight neuropathy, no other symptoms. My primary care provider said, I'm going..."
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I just sent her a My Chart message. I am past being frustrated. I requested these tests. It has been 3 months. As each month crawls by, if I have MM, it is progressing. She goes by my CBC, Basic Metabolic Panel and Comprehensive Metabolic Panel numbers, so did the Hospital, 3 times. I don't think she knows anything about MM or MGUS or SMM.
Sadly, and frighteningly, the clinic I go to are all at her caliber. She did request a neurologist for me, still no call from them. I called them twice and they say "We are triaging" your case. By the time they call me , it will be 2024. I will say I have been diligently, intentionally leaving a detailed precise "Digital paper trail" on My Chart with ALL my symptoms, my deep concerns I have MM . She is a 4th year DO at this clinic, because she is a Resident, the administrators read all correspondence, her decisions, her diagnosis's of all her patients. Because she flat out told me I do not have MM, and wants to put me on anxiety meds because I am "Worried" about it. This is a true living hell.