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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)

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@1oldsoul

According to the website mymyelomateam.com “A person living with MGUS can be expected to develop peripheral neuropathy .” I have read other articles stating the same and it has been the case with me as well, (diagnosed the MGUS in 2021) although mine is very mild and intermittent.

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Replies to "According to the website mymyelomateam.com “A person living with MGUS can be expected to develop peripheral..."

Hello:
It’s been 2 years since my surprise diagnosis- I think I’ve got some mild neuropathy in my toes and fingers- I think is neuropathy. It’s also worse at times- usually morning?
Other times it’s hardly perceptible.
I’ve been taking curcumin capsules (3 gm/day) and seems to help.
Thorne brand

There are a lot of groups on the Internet where members share their experience with MGUS OR Multiple Myeloma. I think it’s important to distinguish anecdotal information from peer reviewed medical research results.
Although I enjoy reading the experiences of others, I rely on my medical team to sort through it all. I do bring questions…lots of questions…when I visit, many of which are generated from comments I read here. I do read about research and often have it on my list to discuss when I see my hematologist/oncologist.
There is a lot to consider, even when deciding if a herbal supplement might be appropriate to add to your regimen. Some seem harmless enough but impact your blood sugar, thus compromising the impact of certain medications. Lots to consider, so first I ask, then we decide together if it might be of benefit.
I have read some pretty crazy stuff on some of these social media sites, so I do not presume anything that I read there is, or is not valid until I do some research on my own. If it’s something I would like to try, I then ask my docs about it and only then decide.
Have a great weekend, y’all!

Patty