Does anyone else have MGUS?

They say there is no symptoms with MGUS but I totally disagree as it was my symptoms that made them do tests for the diagnosis. I definitely believe my neuropathy is due to the MGUS

I will be asking a lot of questions when I finally get to see someone. So far have only been give my diagnosis over the phone by the referring Dr (who knows little about MGUS) and the head nurse (she got special permission to tell me) at oncology as the Dr who did my bone marrow hadn't put my notes into the computer yet and was away when I rang.

According to the website mymyelomateam.com “A person living with MGUS can be expected to develop peripheral neuropathy .” I have read other articles stating the same and it has been the case with me as well, (diagnosed the MGUS in 2021) although mine is very mild and intermittent.

Search for any Peer Reviewed published research on paraneoplastic syndrome and MGUS

Hello:
It’s been 2 years since my surprise diagnosis- I think I’ve got some mild neuropathy in my toes and fingers- I think is neuropathy. It’s also worse at times- usually morning?
Other times it’s hardly perceptible.
I’ve been taking curcumin capsules (3 gm/day) and seems to help.
Thorne brand

Thank you Paula! This is very interesting that MGUS can have to do with autoimmune disease. I wish more were researched and known.

I have the same thing. I also have lots of pain in my back. My tongue is swollen with ridges as well.
Do you have this?

I’m sorry you have pain in your back and something going on with your tongue. I guess I’d check with your doctor for those?
I don’t have those symptoms.

Many biopsies coming up at Mayo, for Amyloidosis.

That’s what I was as thinking. It’s supposed to be very treatable especially when caught early. All the best to you! Let us know okay? 🥹