1. < Osteoporosis & Bone Health

Osteoporosis treatment

Posted by mmodestti @mmodestti, Apr 5, 2023

My osteoporosis has gotten out of hand. In February 2022, I suffered five compression fractures (L1-L-5) and in November, three more (T-10- T-12). Each time I spent 10 to 12 weeks in excruciating pain.
My endocrinologist has suggested starting me on Tymlos for 2 years, and then moving on to Prolia. Has anybody used this medication (Tymlos)? How was your experience?

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kristie2 | @kristie2 | Oct 15, 2023
In reply to @lashu "Oh, I am sorry that your attempts did not work. Over how long a period of..." + (show)
@lashu

Oh, I am sorry that your attempts did not work. Over how long a period of time did it take for the 13% drop? How long have you been on Evenity? How do you feel on it? Your experience is certainly giving me a lot to think about. I will look up Dr. Lucas on Youtube. Thank you so much for your sharing.

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The time period was 2years for the drop. I am on my third injection of Evenity and I feel fine. The only thing that I noticed was being tired off / on. No other issues.

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Rubyslippers | @triciaot | Oct 16, 2023

Here’s a link to some information about the Alkaline Diet, if you’re wondering what it is. This info comes from a nationally recognized comprehensive cancer center, so it is focused on cancer patients considering the Alkaline Diet.
https://www.mdanderson.org/publications/focused-on-health/the-alkaline-diet--what-you-need-to-know.h18-1592202.html

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lynn59 | @lynn59 | Oct 16, 2023
In reply to @lashu "tHANK Thank you for sharing. I wonder if you would not mind answering a couple questions...." + (show)
@lashu

tHANK

Thank you for sharing. I wonder if you would not mind answering a couple questions. I too have osteoporosis and am 82 years old and have been diagnosed recently with osteoporosis. I have a -3.8 score in my lower spine, elsewhere not so bad. Evenity has been prescribed for me by my endocrinologist but I have decided to try for six months (starting this month) to improve my score through exercise, diet. I wonder if you have scores for your diagnosis and if you would not mind sharing them? I am going to try to get those books you mention, and if I do not improve perhaps consult with Dr. McCormick either by phone or directly, as I am not that far away, living here in New England.
Thank you again for your generous description of your efforts!

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Hi. I’d be worried about a -3.8 spine score. I’m 65 and have a -3.1 score in my lumbar spine. I feel it necessary to take drugs to strengthen my bones in case I fall or twist the wrong way suddenly. Im not an expert, but from what I’ve read on this site since joining about two months ago, is that exercise and diet may help stabilize but you can’t count on an improvement

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lashu | @lashu | Oct 16, 2023
In reply to @lynn59 "Hi. I’d be worried about a -3.8 spine score. I’m 65 and have a -3.1 score..." + (show)
@lynn59

Hi. I’d be worried about a -3.8 spine score. I’m 65 and have a -3.1 score in my lumbar spine. I feel it necessary to take drugs to strengthen my bones in case I fall or twist the wrong way suddenly. Im not an expert, but from what I’ve read on this site since joining about two months ago, is that exercise and diet may help stabilize but you can’t count on an improvement

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Thank you. I have a lot to think about here.

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madeleine40 | @madeleine40 | Oct 17, 2023
In reply to @kathleenintexas "My T-score is -5.1 in the spine. I am on Tymlos for possibly two years. Coming..." + (show)
@kathleenintexas

My T-score is -5.1 in the spine. I am on Tymlos for possibly two years. Coming up on one year and will have a bone density test in December. I consulted with Dr. Keith McCormick in MA (flew there from Texas) and am following his recommendations.

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I am curious to know why he recommended Tymlos over Forteo. Thank you

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1 reply
cat714 | @cat714 | Oct 17, 2023
In reply to @kristie2 "The time period was 2years for the drop. I am on my third injection of Evenity..." + (show)
@kristie2

The time period was 2years for the drop. I am on my third injection of Evenity and I feel fine. The only thing that I noticed was being tired off / on. No other issues.

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I have always wanted to know when stopping a drug how long it took to lose the gains. I may have to do this till next open enrollment when I'm finished with evenity next April. I wonder if anyone else knows what the time is.

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kristie2 | @kristie2 | Oct 17, 2023
In reply to @cat714 "I have always wanted to know when stopping a drug how long it took to lose..." + (show)
@cat714

I have always wanted to know when stopping a drug how long it took to lose the gains. I may have to do this till next open enrollment when I'm finished with evenity next April. I wonder if anyone else knows what the time is.

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It all depends on what drug you are taking. You usually need to use an Antiresorptive after any of PTH analogs. If not you can have a rebound and not only lose bone and have a risk for fracture.

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cat714 | @cat714 | Oct 17, 2023
In reply to @kristie2 "It all depends on what drug you are taking. You usually need to use an Antiresorptive..." + (show)
@kristie2

It all depends on what drug you are taking. You usually need to use an Antiresorptive after any of PTH analogs. If not you can have a rebound and not only lose bone and have a risk for fracture.

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Thanks for replying. I'm on Evenity.

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kristie2 | @kristie2 | Oct 17, 2023
In reply to @cat714 "Thanks for replying. I'm on Evenity." + (show)
@cat714

Thanks for replying. I'm on Evenity.

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So am I and I have read that we will need to go on a med after to maintain gains.

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susanfalcon52 | @susanfalcon52 | Oct 18, 2023

I’m on Evenity and have been told that I’ll have to take Fosamax after. I’m more afraid of Fosamax than Evenity.

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