← Return to Acute myeloid leukemia (AML): What can I expect?

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@loribmt

Hi @callyfreed, there are several of us in the forum who have had AML, gone through treatment that has required a bone marrow transplant. I don’t know if this is something your mom will require. It will depend on factors associated with her AML diagnosis such as possible mutated genes that can be responsible for the development of this form of leukemia.

I had 3 mutations that put me in a high risk for relapse and lower odds of survival. So it was necessary to have a bone marrow transplant (Mayo Rochester). All of my excitement was 4+ years ago and I’m feeling fantastic, as though nothing ever happened. That’s why I am here, to offer that same hope to anyone else going through this odyssey.

But not everyone requires a transplant. I have a good friend, whom I met locally, while being her mentor. She had AML but with 1 mutation that had great odds for successful treatment with no transplant. She only required chemotherapy and is now 2 years post treatment and doing great with no signs of relapse.

There are also modified chemo treatments with oral abrogating meds. So it will be interesting to learn what your mother is presented for options.

I can’t think of a better place for your mom than in the good hands of the Mayo doctors and nurses. The level of care spoils us for anywhere else.

The beauty of this forum is to have open conversations so that we can share with other people, such as yourself, who come here to learn through the experiences of members who have walked the walk. Members remain completely anonymous unless they want to message each other privately. And you can certainly message me too.
But you’ll get more perspectives if the conversations is kept in the forum. ☺️

Mayo Rochester is my home away from home! Is this where your mom is being seen?

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Replies to "Hi @callyfreed, there are several of us in the forum who have had AML, gone through..."

@loribmt Thank you for responding so quickly to my comment. It is so encouraging to hear all the beautiful stories of those of you who have gone before my mom through treatment. I've already copied out some of your wisdom to share with my mom after she decides on treatment this week.

Yes, she is being cared for at Mayo Clinic in Rochester, it was such a "wildly loved" and surreal moment for me and my family to find out the same week that my parent's health insurance covers my mom and dad to get care at Mayo (before we knew mom had AML at all) and then, two days later have her white blood count test results in hand. I am so grateful she is getting the best care possible at Mayo Clinic for the duration of her treatment!

I don't know what the specifics are yet, and there have been two bone biopsies (one at Mayo, one at her hometown hospital after the initial low white blood cell count) done in the last week. We should know more about her specifics soon.

Thank you for the offer to connect and share support!