← Return to Acute myeloid leukemia (AML): What can I expect?

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@callyfreed

My mom just got diagnosed with AML last week, and will be cared for by Mayo Clinic. I'm on the forum to seek resources for her and the survivors' comments stand out to me as hopeful and grounded. We go back to Mayo on Wednesday for a treatment options discussion. She is ready for Wednesday to be here, but it's still Sunday. Let me know if you're willing to chat outside of the forum sometime this week? Thank you for sharing your story here!

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Replies to "My mom just got diagnosed with AML last week, and will be cared for by Mayo..."

Hi @callyfreed, there are several of us in the forum who have had AML, gone through treatment that has required a bone marrow transplant. I don’t know if this is something your mom will require. It will depend on factors associated with her AML diagnosis such as possible mutated genes that can be responsible for the development of this form of leukemia.

I had 3 mutations that put me in a high risk for relapse and lower odds of survival. So it was necessary to have a bone marrow transplant (Mayo Rochester). All of my excitement was 4+ years ago and I’m feeling fantastic, as though nothing ever happened. That’s why I am here, to offer that same hope to anyone else going through this odyssey.

But not everyone requires a transplant. I have a good friend, whom I met locally, while being her mentor. She had AML but with 1 mutation that had great odds for successful treatment with no transplant. She only required chemotherapy and is now 2 years post treatment and doing great with no signs of relapse.

There are also modified chemo treatments with oral abrogating meds. So it will be interesting to learn what your mother is presented for options.

I can’t think of a better place for your mom than in the good hands of the Mayo doctors and nurses. The level of care spoils us for anywhere else.

The beauty of this forum is to have open conversations so that we can share with other people, such as yourself, who come here to learn through the experiences of members who have walked the walk. Members remain completely anonymous unless they want to message each other privately. And you can certainly message me too.
But you’ll get more perspectives if the conversations is kept in the forum. ☺️

Mayo Rochester is my home away from home! Is this where your mom is being seen?