I want to to write an update. I have had many tests done and I still have no diagnosis except that I have an overactive nervous system and that those random muscle twitches I feel on the surface or deep in my body are called fasciculations. I refuse to use any drug of pain management because that is not a cure for a diagnosed disease or condition but symptom management probably with some side effects. I don't know if I have had covid, never got a positive test yet I still wonder if my case is related to covid infection of vaccine. My symptoms are mostly on my left side, upper abdomen and back. I have pain or at times burning pain on my upper left back, left shoulder (between left shoulder blade and spine and under left shoulder blade), upper left abdomen to navel, and left pelvic area and left low back. Wide spread tingling and abdominal internal vibrations. Occasional vibrations on particular places of left side of my body. Anti-inflammatory and no sugar (including sweet fruits etc.) diet seem to help with the low back pain and crawling feeling around that area. It also reduce internal vibrations as I mentioned in my previous input.

Food and stress can affect my abdominal internal vibrations - I feel them especially when I lie down. Interestingly, when I lie on my face down and my abdomen is pressed over the bed, my internal vibrations are felt up to my chin and lower lip. When I rest more and have less stressful periods of time, my symptoms do not disappear but are significantly reduced. So rest, rest, rest and rest as much as you can. Cancel things and rest. Keep resting whenever you can and eat well. If I get tired, I would still get very bad fasciculations and other symptoms.

It helped to colour the painful areas/points in a body drawn on a paper (found one on the internet), and to show it to my doctor. It helped to understand that the pain is localised. I'd suggest everyone to show on a body front and back (left and right sided of the body noted) to colour the areas and show it to your doc. Perhaps this can be done for each symptom separately, pain/burning pain, internal vibrations, etc.

I am so tired of this. I have visited many doctors. It has been more than two years now with no diagnosis. I sometimes feel when some doctors treat you poorly or do not believe you when tests come normal could be more damaging than the disease itself. Based on my observation and as someone who experience the disease at first hand, stress apparently aggravate my symptoms but I do not believe it is the cause. I have a solid pain on my left upper abdomen and back, discomfort in my abdomen, weird feelings and fasciculations inside my abdomen (left side from navel to left hip). I don't know if you feel the same way, but it'd help to hear I am not the only one feeling lonely when medicine fails to test, acknowledge and prove my pain. I wish I know what it is so that I can receive treatment if there is any because no one wants to accept that you are indeed suffering an illness (at least that's my experience in my family circle), when you seem normal to them on the outside.