Osteoporosis treatment
My osteoporosis has gotten out of hand. In February 2022, I suffered five compression fractures (L1-L-5) and in November, three more (T-10- T-12). Each time I spent 10 to 12 weeks in excruciating pain.
My endocrinologist has suggested starting me on Tymlos for 2 years, and then moving on to Prolia. Has anybody used this medication (Tymlos)? How was your experience?
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I have a similar story. Also a retired RN. Always exercised and ate healthy but last year had -3.0s in spine and hip. I also just fractured a wrist from a traumatic fall while hiking 1 month after that DXA while trying to decide what to do. Needless to say after several consults with 2 different endos (one being an integrative practitioner) and 2 Internal Medicine docs (one being spouse) I started and just finished 12 months of Evenity. I also had a history of a previous serious wrist needing surgery as well as 2 different rib fractures from a biking fall and another fall while hiking with a full backpack. I argued that they weren’t fragility fractures but more traumatic but I lost. They all said I was in the severe osteo range and needed to do more. My healthy exercising lifestyle wasn’t enough. My Mom had osteo. It’s a disease! Not just a lifestyle! I am 67 now and 5’5 and 130 ish. I’ve been fortunate to have no side effects from Evenity except a little tired and headache the next day or 2. I am supplementing calcium, vitamin D, K and magnesium. My diet excellent and I’ve added L. reuteri yogurt that I learned to make. I continue to exercise every day with walking, stomping, heel dropping, weights, yoga and aqua aerobics. And I usually get 3-5 prunes a day. My DXA is scheduled for Friday and then a few appts to see what is next. I got
my endo to order blood work including a CTX I did not have one baseline because he wouldn’t order it possibly because of
my wrist fracture and surgery. I read all these posts every morning to learn from all and will let
you what the recommendations are. I wish I didn't have to do anything more but I don't think that will be the case. I feel like I know windyshores ( thank you, I so fear prolia) and many others on this forum. Thank you all for sharing your journeys, questions, fears and successes.
Hi,
We are taking the same supplements and I take a few more. I was happy to hear that you have completed your course of Evenity. What scares me is what if I need dental work such as a root canal etc. I am going on my 3rd month and no side effects except more tired than usual. I would think that you need to follow up with another med to keep your bones from losing the gains. I would never use prolia and made my endocrinologist aware of this. I did a CTX prior to starting . I had to push my endocrinologist for labs.
Please let us know what your DXA shows. Wishing you all the best.
yes i will post my results for sure. I’ve gleaned so much from all of these posts. i have many stable crowns but who is to say they will stay that way. I fear they will want me on prolia as all the
literature is pointing to that. so I guess that leaves me alendronate weekly or reclast. I’d loved to be able
to keepup with my nutrition, supplement and exercise but i don’t think i will hear that from any of
my docs. Interested in the time frame after my last evenity to when i need to start something else. I wish i had a baseline CTX but I’m hoping to show up in the 200-350 range. what other supplements are you taking if you dont mind
my asking.
tHANK
Thank you for sharing. I wonder if you would not mind answering a couple questions. I too have osteoporosis and am 82 years old and have been diagnosed recently with osteoporosis. I have a -3.8 score in my lower spine, elsewhere not so bad. Evenity has been prescribed for me by my endocrinologist but I have decided to try for six months (starting this month) to improve my score through exercise, diet. I wonder if you have scores for your diagnosis and if you would not mind sharing them? I am going to try to get those books you mention, and if I do not improve perhaps consult with Dr. McCormick either by phone or directly, as I am not that far away, living here in New England.
Thank you again for your generous description of your efforts!
The other vitamins are Krill oil, citrus bergamot, berberine, ashwagandha , vit E , CoQ10 , B12& Folate and a high potency probiotic. I also take Collagen protein from Ancient Nutrition.
My baseline CTX was 933. I hope when I take another test in a month I will be a lot lower.
I thought I would also answer your post due to I am 71 and work out take supplements and tried to reverse my osteoporosis with continued healthy lifestyle. I had a 13% drop trying this. Unfortunately it didn’t work for me. My last Score of my spine was -4.6. Now I am on Evenity.
I would suggest to look up Dr. Doug Lucas many YouTube videos along with McCormick DC.
didgi2175
My husband was diagnosed with osteoporosis a couple of years ago, after two broken hips, and rods put in his back supporting four broken discs, and a broken wrist. He is not on medication and the doctors haven’t mentioned that he should be. Should he be?
Oh, I am sorry that your attempts did not work. Over how long a period of time did it take for the 13% drop? How long have you been on Evenity? How do you feel on it? Your experience is certainly giving me a lot to think about. I will look up Dr. Lucas on Youtube. Thank you so much for your sharing.
Thank you for sharing, kristie2. I have been alerted to the importance of the pro and pre biotic, and wonder what high potency probiotic you are taking. The CTX seems to have two meanings, and I was never given that score: what is it measuring? I am taking a collagen protein also, they were all out of Ancient Nutrition so I have another brand but I think the ingredients are the same.
The probiotic is visbiome or one’s made by Brookfield Costco sells them and you have to ask the pharmacist for they are refrigerated.
CTX is the marker of osteoclast activity to measure the level of bone resorption.