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@jonisuealan

I’ve been on 1500 mg of hydrea daily for over 3 decades with minimal side effects and a stable platelet count for ET. Diagnosed when I was 20 and I just turned 56! I’m active and overall fairly healthy (except have strep throat now). I tend to pick up everything with this poor immune system… Anyway My doctor wants to switch me to interferon as he says hydrea for that long is not good. However my insurance doesn’t cover much of it. Monthly amount out of pocket is $2500, who can afford that. I’m not sure what to do. Looking for any suggestions. Thanks!!!

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Replies to "I’ve been on 1500 mg of hydrea daily for over 3 decades with minimal side effects..."

You could try Anagrelide. It reduces platelets. If it is iexpensive on your insurance check Goodrx.com. You can get it fir about $48.00 a month at pharmacies. My doctor even has flyers on this at his office. When you check for price click down to see price at different locations, Then print the coupon.
Best wishes, Eileen

Joni, do look into financial aide from the interferon producer itself. I could not justify the enormous expense of Besremi as it would quickly gouge out my retirement savings. Even Medicare with plan D would be a dreadful cost though maybe this will change as the IRA rules start to take affect for Medicare drug plans in the next few years.) I applied and have at least been approved for the first three months. (They've implied I have to do some other application in January, which I dread.) The application process looked easy at first but actually was filled with frustrating pauses and roadblocks. It took months to adequately meet all the requirements of the body that makes the decision. Still, what an enormous help free treatment is. (During the process I suggested they do more of a prorated discount, which seems more fair, but the pharmaceutical rep said no, it's all or nothing financial aide.)