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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Jen, Alumna Mentor | @sandytoes14 | Aug 10, 2016
In reply to @janicedean "My name is Janice, I was diagnosed with Fibromyalgia in 2007. Since then I haven't been..." + (show)
@janicedean

My name is Janice, I was diagnosed with Fibromyalgia in 2007. Since then I haven't been able to work. I have been in constant pain. For the first 3 years I was able to manage with just physio, walking and vitamins. Then that wasn't enough. I am on Tramadol 200mg SR 22x Daily, Paracetamol 500mg & Codeine 30mg 8x Daily. As soon as I try to do anything I'm in agony. My Rheumatologist hasn't done a full physical examination for about a year as it is far too painful for me. I was on Targin 40/20 twice a day, was doing really well on until government said I couldn't have it anymore. I have tried Methadone, Savella and Memantin. None of these have worked for me. The Fibromyalgia has left me a physical wreck.

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I get.."You smile all the time, you must not be in that much pain" REALLY? I say, it's all about your attitude in life. Why walk around with a long face. Be glad you woke up today!"

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Jen, Alumna Mentor | @sandytoes14 | Aug 10, 2016
In reply to @alysebrunella "Hello and welcome to all of our new members, @sunshineme, @janicedean, @granny988, @hosta, @hemraj, and @lauriedr!..." + (show)
@alysebrunella

Hello and welcome to all of our new members, @sunshineme, @janicedean, @granny988, @hosta, @hemraj, and @lauriedr! We're thrilled to have you all as part of the Chronic Pain group. And appreciate you sharing a little bit about yourself in this thread. I'd also like to introduce you all to existing members of the Chronic Pain group, @leh09, @19lin, @suebreen54, @ladyjane85, @briansr, @salena54, @sharonmay7, and @lolomarie.

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And me too! I joined yesterday.

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ladyjane85 | @ladyjane85 | Aug 10, 2016
In reply to @dawn_giacabazi "Hello @lauriedr I can feel your frustration through your note. I have a little experience in..." + (show)
@dawn_giacabazi

Hello @lauriedr
I can feel your frustration through your note. I have a little experience in life long issues. I also have seen many of patients with similar frustrations however I am no expert. I have found over the past couple years that sometimes it is in the best interested of the patient to simply wean them off everything and start over again. I know that is very difficult to hear but I wonder if this is what your doctors are thinking. Our bodies become so use to the drugs and treatments that they no longer effective. (Just like a patient losing weight, they hit a plateau and they need to change it up to kick start it again.)
It might be beneficial to discuss with your physicians PGx Testing. This would help them find the best most effective medications to treat your symptoms without going through all the different trial and error periods. Here is a link to Mayo Clinics PGx profiling. http://mayoresearch.mayo.edu/center-for-individualized-medicine/pgx-profile-service.asp

Please know you are in my thoughts and prayers.
Thanks
Dawn

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I read about the Pharmacogenetic testing recently here, asking my pain<br>management dr about doing it, but he told me to go to my principal dr., who<br>is a nephrologist. I could go to my neurologist bec have had reactions to<br>nearly 50 meds. Some have been so severe I have been hospitalized, so<br>remain in chronic pain. Reading Mayo clinic about it, most likely medicare<br>would not allow it, and cannot afford $3,000. It is something I believe I<br>need badly. Sad, I have lived 30+ years with such pain going from dr to<br>dr. Not worth living. ladyjane86<br><br>

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ladyjane85 | @ladyjane85 | Aug 10, 2016
In reply to @ocangela "I'm Angela and I've just joined in. Had a car accident last Nov. has a fracture..." + (show)
@ocangela

I'm Angela and I've just joined in. Had a car accident last Nov. has a fracture of L1 which the Drs let heal. That seems to have happened but I am let with conic pain in my middle back. Nothing short of Norco seems to help. I hate taking this every day. LOoking for other ways to manage

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to ocangela I too let compression fractures heal themselves, including<br>the last at T6 level - the worst. I will go to ER next time and get the<br>injection with cement put into fracture. Last time was the worst bec of<br>location. ladyjane86<br><br>

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Jen, Alumna Mentor | @sandytoes14 | Aug 10, 2016
In reply to @ocangela "I'm Angela and I've just joined in. Had a car accident last Nov. has a fracture..." + (show)
@ocangela

I'm Angela and I've just joined in. Had a car accident last Nov. has a fracture of L1 which the Drs let heal. That seems to have happened but I am let with conic pain in my middle back. Nothing short of Norco seems to help. I hate taking this every day. LOoking for other ways to manage

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Hi Angela, I just joined in yesterday as well. I have Cervical stenosis, disc bulge, and bone spurs. I have done epidurals in which a mix of lidocane and steroids are injected. They worked for many years. In my lumbar spine, I had RFA--Radio Frequency Ablation done. That helped dramatically. Do you see pain management doctors?

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ladyjane85 | @ladyjane85 | Aug 10, 2016
In reply to @kelseydm "@19lin Did they give you any explanation as to why the MRI would have caused the..." + (show)
@kelseydm

@19lin Did they give you any explanation as to why the MRI would have caused the burning sensation up your spine? @leh09 @seanbeck @suebreen54 @ladyjane85 @briansr @salena54 @sharonmay7 have any of you had this experience with an MRI?

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@hosta Nerve stimulator does nothing but tries to make your brain<br>believe the vibration and you will forget the real pain. Had to have mine<br>removed also. But for a long time, my body would vibrate without it...<br>ladyjane86<br><br>

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ladyjane85 | @ladyjane85 | Aug 10, 2016
In reply to @janicedean "My name is Janice, I was diagnosed with Fibromyalgia in 2007. Since then I haven't been..." + (show)
@janicedean

My name is Janice, I was diagnosed with Fibromyalgia in 2007. Since then I haven't been able to work. I have been in constant pain. For the first 3 years I was able to manage with just physio, walking and vitamins. Then that wasn't enough. I am on Tramadol 200mg SR 22x Daily, Paracetamol 500mg & Codeine 30mg 8x Daily. As soon as I try to do anything I'm in agony. My Rheumatologist hasn't done a full physical examination for about a year as it is far too painful for me. I was on Targin 40/20 twice a day, was doing really well on until government said I couldn't have it anymore. I have tried Methadone, Savella and Memantin. None of these have worked for me. The Fibromyalgia has left me a physical wreck.

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@hosta Oh do I know that comment - how good you look, how can you be in<br>pain - they would not withstand the chronic 8 to 9 level pain for 25+ years<br>I have lived within my back! ladyjane86<br><br>

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ladyjane85 | @ladyjane85 | Aug 10, 2016
In reply to @hosta "I too am looking of ways to manage the pain. I hate taking this kind of..." + (show)
@hosta

I too am looking of ways to manage the pain. I hate taking this kind of medication especially when it doesn't to that much good.!

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@hosta Procedures for nearly 30 years and nealy50 meds that do not good<br>or hospitalize me w/ such bad effects. I am in your boat and my heart<br>goes out to you. ladyjane86<br><br>

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hosta, Eve | @hosta | Aug 10, 2016
In reply to @janicedean "My name is Janice, I was diagnosed with Fibromyalgia in 2007. Since then I haven't been..." + (show)
@janicedean

My name is Janice, I was diagnosed with Fibromyalgia in 2007. Since then I haven't been able to work. I have been in constant pain. For the first 3 years I was able to manage with just physio, walking and vitamins. Then that wasn't enough. I am on Tramadol 200mg SR 22x Daily, Paracetamol 500mg & Codeine 30mg 8x Daily. As soon as I try to do anything I'm in agony. My Rheumatologist hasn't done a full physical examination for about a year as it is far too painful for me. I was on Targin 40/20 twice a day, was doing really well on until government said I couldn't have it anymore. I have tried Methadone, Savella and Memantin. None of these have worked for me. The Fibromyalgia has left me a physical wreck.

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I feel that people just get tired of hearing your troubles all the time. So I try to keep it to myself. I thank God that I have some understanding christian friends and family.

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hosta, Eve | @hosta | Aug 10, 2016
In reply to @ocangela "I'm Angela and I've just joined in. Had a car accident last Nov. has a fracture..." + (show)
@ocangela

I'm Angela and I've just joined in. Had a car accident last Nov. has a fracture of L1 which the Drs let heal. That seems to have happened but I am let with conic pain in my middle back. Nothing short of Norco seems to help. I hate taking this every day. LOoking for other ways to manage

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I fell in July 2015. ER drs. said that I had internal bruising and that it would take time to get over it. I got where I couldn't breath it hurt so bad that a chest x-ray was ordered. That is when they found I had 2 compression fractures. Then because of the stimulator they couldn't do a MRI. They messed around and finally I went to the Doctor who injected the cement and fixed the first one. The first thing he did was remove the stimulator, ordered a MRI then said the compression (he found 4 factors ) had healed wrong and that there was nothing he could do. He said if he had gotten it shortly after the fall he could have fixed them. So....

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