← Return to Diabetes Insipidus - Treatment with LDN?

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@JustinMcClanahan

Hi, @scarless, welcome to Mayo Clinic Connect.

I'd like to invite @farmgirl, @idumas, @emme42, and @144000 to this discussion as they have discussed Diabetes Insipidus on Connect and may be able to share their experiences with how they have managed their diabetes insipidus and if they have had any experience with low dose naltrexone.

@scarless, you mentioned you have had issues with reactions a lot of different medications as a result of your diabetes insipidus diagnosis. What did your naturopath have to say in regards to a possible reaction to the naltexone?

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Replies to "Hi, @scarless, welcome to Mayo Clinic Connect. I'd like to invite @farmgirl, @idumas, @emme42, and @144000..."

Honestly, my naturopath isn't sure. I reacted to some supplements she tried to manage my Hashimotos (they put me into hyponatremia) so I think she is a little nervous to try anything else at the moment. Last I heard from her, she was reaching out to her resources to see if anyone had experience treating an autoimmune form of DI. This is generally my problem. Diabetes Insipidus is not an overly common disorder so practitioners tend to treat the most prominent medical issue at the time without regard to my DI. They don't always understand that it has to be first at all times. Then my docs get puzzled and are like, "oh, huh, that's odd". It's tough. I have to be pushy about my needs a lot.
In my research about LDN, I haven't seen anything that would indicate it affects the pituitary or renal function at all but wanted to see if anyone in the world wide web had any experience with it 🙂
Thanks @JustinMcClanahan for the help with resources!