← Return to Restless Legs - Any suggestions as seen many doctors and medications

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@3dogs

I've seen several references to the RLS foundation, but when I looked at it, they wanted donations and well...guess I'm cheap as have tried so many things from people and doctors over the years that not sure I want to be solicited constantly. Not saying they would but found it interesting that the first thing I see is a pop up to donate in order to join. It's like my father in-law who has Alzheimer's and the WORST by far and I mean by far was the Alzheimer's foundation for soliciting. Poor dad was giving away hundreds of dollars a month due to solicitations and he has Alzheimer's and didn't realize...sometimes he was sending checks 2 or 3 times a week. My sister in-law caught it and took away his checkbook and only donated to a few organizations that dad had donated to for years. He was not only receiving calls but mail like 3 times a week after week after week. Needless to say, I stopped donating to them after all that, but it makes me wonder on the RLS foundation when the first thing on the website was wanting money.

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Replies to "I've seen several references to the RLS foundation, but when I looked at it, they wanted..."

I understand your concerns, they offer a great deal of information without you joining. I opted to join , first of all because I was desperate, spent 2 months with little or no sleep after I stopped meds ,but mostly so I would receive the newsletter “Sleepwalker” through the REAL mail, plus access to all the webinars. They only send out 1 email each month.

I have had only 1 solicitation since I joined & that was for a membership renewal one year after I joined.

The quarterly newsletters are usually full of information. For instance, my husband got little to no relief from pramipexole, ropinerol……only augmentation. It got worse, earlier in the day. We discovered that the only thing that would work for him was oxycodone. One of the newsletters discussed augmentation, ferritin levels & oxycodone.

That’s my 2 cents. I’m sure that some organizations solicit heavily, the RLS Foundation hasn’t.