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Propofol for bone marrow biopsy

Blood Cancers & Disorders | Last Active: Apr 18 11:22am | Replies (46)
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@kittycatgirl

Thanks so much, Your answer was very reassuring. I assume you are asleep? I am too anxious for Versed. Is propofol available at all locations? I would hate to make an appointment in Phoenix only to find out you can only get it in Minnesota. Do I need to have an appointment with a doctor at Mayo first? I will be traveling from Colorado. I will be self pay, my dad has agreed to pay for whatever I need. If needed I will have my doc send a referral to Phoenix. Should I specify Propofol on the scheduling request? I am unsure of how urgent the biopsy will be, I will ask for phlebotomy in the meantime. Hoping it won’t take too long to schedule an appointment at Mayo though. You have have been so helful.Sorry for the barrage of questions.

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Replies to "Thanks so much, Your answer was very reassuring. I assume you are asleep? I am too..."
Lori, Volunteer Mentor | @loribmt | Oct 12, 2023

Hi @kittycatgirl I’m fairly certain that all Mayo Clinic’s would use the same procedures for BMB.
As for protocol for who can receive a BMB there, you may need to have been seen by a doctor first or at least be accepted for patient review. The first thing would be to follow that link I provided yesterday to initiate an appointment and go from there.

Just so you’re aware, even if you don’t have the sedative, you would get a local anesthetic with the biopsy. So sometimes just taking an anti anxiety med like the Ativan (lorazapam) like I mentioned and then having the local anesthetic injected at the site may be enough for you to remain comfortable.

You’ll know more after your next appointment with the hematologist. Maybe they won’t require one at this time. ☺️

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wendy517 | @wendy517 | Oct 12, 2023

Ask away, this is a great group to be a part of. Very supportive and you can ask as many questions as needed, there is always someone who can provide feedback or their experience and typically more than one.
I have PV myself, diagnosed this past April. My hematologist oncologist said I can wait a couple years for my biopsy, after 5 pints were removed over a period of about 7 weeks my numbers came down. Then I was able to go about 2 months until the next one.
I definitely noticed there are very large variations in PV experiences. I've struggled with a number of things, extreme fatigue, very achy hands, feet and other joints, headaches (my BP has been a bit uncontrolled) and bad shortness of breath.
I am incrementally starting to feel better.
You've got this and it takes a village, we're that village.

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